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Hi folks, I'm a 40 year-old lady living in London. I've recently been diagnosed with a very rare cancer, low grade endometrial stromal sarcoma, stage 4b with several metastases. Last September I had total hysterectomy so on top of incurable cancer I...
Hi, my 15 yr old son was diagnosed with Rhabdomyosarcoma in December 2025. It originated in his testicle, which was removed but it had metastasised to his lung. Chemotherapy started on the day of diagnosis. He was due to have 9 cycles of chemotherapy...
Hi there a relative of mine was recently diagnosed with myxofibrosarcoma, they had 5 weeks of radiotherapy which unfortunately did not work, they then had 3 weeks high intensity radiotherapy crammed in to 1 week and they are feeling really miserable,...
Dear All, I'm new to this group. I found out i had a large gynaecological tumour on the 6th of February when I was admitted short of breath, with my right lung full of liquid. The treatment I have received from the NHS has been fantastic, and I cannot...
Hi folks, Not sure how many people with the same diagnosis I might connect with here - apparently we're quite rare - but I thought I'd say hi anyway. A year after first seeing my GP about a growing lump in my back, I'm a now couple of months after...
Hi, my husband has just been diagnosed with a non aggressive sarcoma in the muscle in the top of his leg surgery booked for 19 Nov to remove sarcoma and muscle with radiotherapy to follow, can anyone give me some idea of what to expect as unfortunately...
My husband has had a tumour removed from his buttock. A very large incision, as the tumour was embedded in the gluteous maximus and all had to be removed. He is still in hospital eight weeks after the operation as the wound is not closing at one bad damaged...
Hi im almost 6 months post initial surgery to my foot & have completed 30 sessions o f radiotherapy. Sadly my tumour has metastasised/spread to my groin lymph nodes & I have lumps in my lower leg within the lymphatics. I’ve been told this is highly...
I have very recently been diagnosed with DFSP with sarcomateous transformation. I had what was believed to be a large epidermoid cyst removed from my upper back in Nov 25 and didn't hear anymore until a call from Sarcoma team in March 26. This was...
Just got the results of right thigh muscle biopsy which confirms myxoid liposarcoma due to start 5 weeks of radiotherapy to shrink the tumour before surgery, would welcome any advice about side effects and post operative recovery as normally very active...
