Hi there, I have been getting different treatments of my matastic synovial sarcoma's for the last 16 years. My oncologist has now run out of conventional treatments. He has now suggested, after finding out I cannot take part in a trial he was looking...
Hi everyone. I have recently (a week ago) finished 25 days of radiotherapy. It went better tan expected, but not without it's downs. I have however had 2 anxiety/panic attacks take over me that I have managed to quash before they took hold, So I am still...
Hello everyone I'm new here and really need some support right now. About 3 weeks ago I saw that my forearm was a little swollen on one side. I felt around a little and found under the swelling a small pea sized ruberry lump. It seemed to me attached...
Hello folks - 53 year old male, here. Well, went to my GP about 5 weeks ago, and here I am, after xrays, MRIs, CT scan and Biopsy, with a large soft tissue sarcoma (unidentified as yet) in the top of my arm. My life has flipped upside down. The surgeon...
Right thought i would do an update and see what peoples thoughts are. i got the CT scan results a couple of weeks ago from UCLH. bear in mind that the Ultrasound from my local hospital had the report that there was a mass and it was a Sarcoma. UCLH's...
Evening everyone. I have just began my radiotherapy treatment, I am on day 2 of 25 then will be having my surgery 6weeks after the last session. I am just wondering how others have dealt with side effects. I have sarcoma on my knee, and although I am...
Dear All Any help gratefully received, how do you survive the long journey of unknowing. Journey started back in September with a 111 call, as I couldn't get a gp appointment for 6 weeks at surgery, even when I explained it was about a concerning...
Hi I was wondering if anyone has been through similar to me I am a 30f with two young children , I am awaiting biopsy and scan on a lump I have had that has grown 2cm in size in 3months on the back of my left knee/leg it’s not painful a little bit of...
Hi everyone, was just diagnosed Thursday morning with a soft tissue sarcoma in my left breast, after originally being diagnosed with a ruptured cyst and told they'd see me in 6 months. By the time I received that letter the thing had doubled, so I called...
Hi guys, I was wondering if anyone had the combination of Dactinomycin (Cosmegen Lyovac) Ifosfamide Vincristine as their treatment that they would kindly share some knock on effects they had, did they take vitamins/supplements that really helped...
