Right thought i would do an update and see what peoples thoughts are.
i got the CT scan results a couple of weeks ago from UCLH.
bear in mind that the Ultrasound from my local hospital had the report that there was a mass and it was a Sarcoma.
UCLH's results came back a bit different..
i got the results via a Phone call. nothing face to face..
"we have some good news, there is no sign of any cancer or lumps. its all clear"
NOW Hang on sec... i can see and feel the lump in my leg. its defiantly there.
so now i have a Face to face appointment on the 16th..
however i have weekly meetings with a nurse over my leg ulcer, and they keep an eye on the "Lump"
this week, the Nurse did the dressing and then checked the lump..
She remarked "Its got a bit smaller" as she sized it up with her fingers..
I felt a bit sick.. Thats Not the original lump Nurse...
so now i have a 2nd lump in the lower leg. this new one is 1.5cm away from the first one. both are still able to be felt and are slightly visible under the skin.
Did UCLH make a mistake and scan the wrong leg? the GP that checked the lump after the nurse found them was convinced its a sarcoma. the Dr at the Accident and Emergency at Redhill said if UCLH hadnt taken control, he would of put me forward for a chemo therapy startup.
so who do i believe at this point?
its really starting to get me down about things.. If stanmore had taken my leg off in the first place back in 2017, i wouldnt have half the issues im having with my leg. the constant pain from the ulcer in the ankle, the stench of rotting flesh i get from the dressing. 6 years thats been going on. and now unexplained lumps..
or lumps that dont really exist...
i dont know what to do...
Hi JesterTiger
That does sound all very difficult, hope the face to face meeting on the 16th provides you with some of the answers you need.
<<hugs>>
Steve
Cheers Steve, its just driving me nuts. thankfully, having this forum to type things out helps a lot with things in my head. i try to explain things to my parents but its hard cause i dont want to stress them out again. they almost fell to bits when i first had cancer.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007