Hi everyone, was just diagnosed Thursday morning with a soft tissue sarcoma in my left breast, after originally being diagnosed with a ruptured cyst and told they'd see me in 6 months. By the time I received that letter the thing had doubled, so I called back up and asked to come back in. A failed attempted aspiration and a second biopsy later, different story! I'm 37, F, have a 4 year old boy and an amazing partner. Have been urgently referred and awaiting a PET and CT scan at the Royal Marsden to know more. So many questions and so many worries. Terrified but putting on a hella brave face for now. I've been briefly prepared for likely chemo and a mastectomy from the initial breast clinic, but awaiting contact from the Marsden who have me on their MDT next week - the lump is already very large and growing
Well done for chasing up when your lump did not follow the initial diagnosis.
There are quite a few "varieties" of sarcoma, my wife's is Leiomyosarcoma - for her is was likely a fibroid but it was only found when it had gone to secondaries in her lung - long story.
Good you have being referred to the Marsden, sarcoma care is provided by a number of specialist centres. Always a bit interesting when Janice sees a new doctor and we spot them looking up LMS on google.
Janice actually had a hysterectomy before she was diagnosed but after diagnosis she had two rounds of chemo. The first caused some other issues and had to be stopped, however the doctors managed to fix that and then the second chemo she had rendered her cancer stable, still there but no evidence of progression now for over 10 years.
Hope you hear from the team soon.
<<hugs>>
Steve
When Janice was first diagnosed it almost came like a bit of relief since the doctors had spent a lot of time trying to find out what was happening and initially they were keen on a watch and wait to work out what was happening.
Janice's brother was quite helpful but his wife had been through a different issue with cancer and struggled a bit with her emotions over that it felt.
One thing I really struggled with is that Janice was clear she was not interested in getting a prognosis and as our son was quite young I was tied up thinking how would I care for him after she was gone. We had a lot of support from his school that was very helpful but also a really good friend was there for us whenever we needed and that was priceless.
<<hugs>>
Steve
