Hi there,
I have been getting different treatments of my matastic synovial sarcoma's for the last 16 years. My oncologist has now run out of conventional treatments. He has now suggested, after finding out I cannot take part in a trial he was looking at, that I start oral Cabozantinib as a growth inhibitor to try and stop the growth of my latest tumour.
Has anyone here tried this medication or had any experience of this treatment?
Keep going everyone... there is so much research going on every day means there might be a successful treatment in the pipeline for your future.
Hello eyestar21
I hope you don't mind me responding to your post as I had a different type of cancer to you- I had endometrial carcinoma sarcoma. Hopefully by me replying it will bump your post back to the top and someone who has had more experience will see it and offer support.
I am sorry to hear that you have had sarcoma for the last 16 years and the oncologist is now looking at other possibilities for treatment. I have found some info on Cabozantinib that may be of interest.
Cabozantinib | Macmillan Cancer Support
I wish you well for the next stage in your treatment and if there is anything else you need in the meantime please do ask.
Jane
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Good evening eyestar21 and all the members, I am new and would like to have some information on synovial sarcoma. One of my relatives has metastasized to the lungs. He has already undergone chemo (3 courses). I can't find anything on the forums about people with this type of cancer. At first, the problem was localized to the foot, then after surgery, it was discovered that it had metastasized to the lung. What treatment is used? How does it work over time (treatment tolerance, efficacy, etc.)? Thank you for your help. Take heart.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007