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I’ve recently been diagnosed with a neuroendocrine carcinoma, type 4. It’s spread to my liver. I was referred to the Neuroendocrine cancer team at the Freeman hospital in Newcastle; after studying my details they decided I can be treated here in Stockton...
Mum was diagnosed a year ago - it has spread to her liver, kidneys are effected as well. She has lost an awful lot of weight and can't absorb nutrients. Just wondered if anyone has any tips on helping with weight gain? Love to all xx
Hi My husband (45) has been diagnosed with NET in the pancreas and spread to the liver. He’s on hormone injections and stable. He’s been offered Whipple and a Liver transplant in 2 procedures across a 12 month period. wondering if there’s anyone else...
Hi, I am a 48 year old man, active and completely healthy until I was admitted to hospital with a UTI in June. This prompted various scans and I was diagnosed with cancer early July but due to no obvious primary it took a further 2 months of biopsies...
Hi, does anyone have any information or experience with immunotherapy to treat NETs? I have read some articles relating to trials that have been conducted suggesting 44% response rate in high grade NETs using a combination of immunotherapy drugs, regardless...
Hi Everyone, I have just been diagnosed with a duodenum neuroendocrine tumour and I am scared stiff! I work for the NHS and had been working for Cancer services as an MDT co - ordinator for many years until 2019 and nothing has prepared me for this...
Hi everyone, We’ve launched our annual survey for 2022! We want to hear what you think about the Online Community. The survey should take around 15 minutes to complete. The survey is anonymous. Please complete our survey here. This survey is designed...
Hi, I'm 65 years old & live in Devon. I was diagnosed in January with primary tumour in pancreas and two secondaries in my liver. Also with Zollinger-Ellisson syndrome. The latter caused my hospitalisation over Christmas which led to my diagnosis and...
I'm male, 79 years old and I've just (July 2022) finished my second course of treatment after being diagnosed in June/July 2020. The first treatment was five cycles of cap/tem stopped one cycle early (January 2021) due to chest pains, but CT scans showed...
hi everyone,, to xut a very long story short,,, my mum had pain 4 years ago, and they couldnt find anything wrong with her after 6 weeks in hospital they took her appendix out and discharged her,,, saying that they would follow it up.. they never did...
