Newly diagnosed Duodenum

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Hi Everyone,

I have just been diagnosed with a duodenum neuroendocrine tumour and I am scared stiff!

I work for the NHS and had been working for Cancer services as an MDT co - ordinator for many years until 2019 and nothing has prepared me for this. And I seem to have forgotten everything !

I should have asked questions but I was in shock , could anyone shine any light  on what I should be expecting regarding treatment.

I have just had an EUS in which they tried to remove a 5mm polyp by EMR but failed.

  • Hi  and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

    I don't have this type of cancer but noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list and hopefully a member of the group with the experience you need will see it and respond.

    In the meantime, I've found this information for you on treatment for NETs which I hope you'll find helpful.

    While you're waiting for replies, it would be great if you could pop something about your diagnosis and treatment so far into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

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