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Hi everyone I was diagnosed with Nets , I have it in my Liver, Bowel, Bones, Lungs and it was in my right eye but I’ve now lost the eye so I have a prosthetic one, which I designed and it’s a clock which has the time of the nucleation . My cancer has...
Hi all. This is me. Diagnosed March 22. I have Grade 3 Neuroendocrine Cancer. Primary pancreas with mets to Liver. Ki67 50%. Prognosis 2/3 years.
My husband has recently been diagnosed with a NET of his pancreas but is also pushing into his spleen the surgeon at castlehill hospital in Hull is to remove the spleen and a.distal portion of the pancreas we are extremely naive we know nothing about...
Hello For All Members and this is the my journey for NET. My name is Umut and was diagnosed with nets in July 2021, had bowel surgery July 2021 Operation 14.07.2021 - Carcinoid tumour of small bowel (pT4 N1, G1 Ki67 <2%, R0, 8 of 20 lymph nodes involved...
Hi just joined, had bowel op 4 yrs ago and all fine till last September when scan showed new tumours in liver, on lanreotide for past year, currently on holiday in Greece , so hasn’t stopped me, just need to be organised with my man bag and essentials...
So hi I’ve been diagnosed with Nuc stage 4 grade 3 so I basically have this embedded in my liver, I don’t appear to have it anywhere else but not impressed that its living there rent free! I am having Chemo and about to have my 3rd cycle and then...
Hi Everyone, I have just had a colonoscopy that has picked up a polip that was proven under biopsy to be Net but non cancerous. I have to go for further investigations. But reading about Net's since I found out I have realised that I have lots of...
Hello,I am new to this forum. I have been diagnosed with neuroendocrine tumours in my small bowel. I am being treated with a hormone injection ,Somatuline Autogel (lanreotide) , I had to have my gallbladder removed in order to proceed with the treatment...
Hi, my husband has been diagnosed with neuroendocrine malignancy soft cell cancer - apparently it’s rare and aggressive. It all started back in January 2022 but after a missed diagnosis then, was finally identified in June2022. He has 13 tumours throughout...
Long story short had pancreatic cancer in the late 1980s full whipples procedure cured. Then in the early 1990s diagnosed with nets on the liver, so far the condition is very slow growing so am not having any treatment just annual scans,tests and visit...
