Hi Everyone….
I’m new to this group and if like to share my journey so far with you…
July 27th 2022
I've just been diagnosed with a carcinoid tumor in my left lung,it's caused me to have multiple bouts of pneumonia...bronchoscopy performed to get samples and further scans also...PET scan has revealed it has not spread...consultant thinks the best way forward is to operate and remove the tumour...this feels like a very lonely time and a very scary time, trying to stay positive but its hard,
Surgery to remove the tumour went ahead 30th August 2022
UPDATE 5/9/22
So I’m finally home
Wow what a whirlwind of a week…everything went as it should have as far as I know
Just waiting for the next discussion with the consultant now
Beginning of November apparently!!
They managed to do key hole surgery as they said but took the lymph nodes around the tumour too for sampling…
I’m very sore and feel emotionally drained today….
UPDATE 14/10/2022
So I have heard off my surgeon finally today after 6 weeks of waiting by phone call!
So all in all the operation went well and they removed the tumour and lymph nodes for sampling
He’s telling me they found cancer cells around the tumour and successfully removed some but not all…I have another appointment the 8th November
But once again I feel like I’m
In limbo as to what’s going to happen next…anyone else experience this?
Any help or advice would be appreciated….hugs to you all. X
Hi 4dri3nn3 and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
I don't have the same type of cancer as you, but I know how hard waiting for results and then to find out what happens next can be.
I noticed that your post hadn't had any replies from the other members of the group yet so responding to you will 'bump' your post back to the top of the discussion list where it'll be more easily spotted.
Do come back and let everyone know how you get on at your appointment a week tomorrow.
x
"Never regret a day in your life, good days give you happiness, bad days give you experience"
