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Hi I was diagnosed with myeloma in April 2020. Underwent radiotherapy and six months of velcade and had stem cell transplant in December 2020. I have just found out I have relapsed. I have been offered two treatments prior to stc, Carfilsomib and the...
Anyone else really weak and wobbly? My hubby has just had his cells harvested so now its wait time. Neuropathy has been a big problem but now he seems terribly weak - will that improve after SCT?
Hi Someone very close to me has recently been diagnosed with myeloma. She is In her early sixties and is fit and well otherwise. Her treatment starts this week on the newly approved drugs. This is all very new to me. I've not had any experience of...
I am 69 in my second marriage with 2 daughters and 3 lovely granddaughters from my first marriage and a son and 2 granddaughters from my second. For several years I have been receiving blood tests for paraprotein levels recently which had reached 19...
Can anyone who has had SCT at Kings London let me know their experience please. Thanks in advance
Hi,I'm 5 weeks into treatment for my myeloma and the para proteins are dropping so all good there. Yesterday I felt a bit iffy so spoke to the hospital who did my bloods and it then turns out I've caught covid...Ttheyve cancelled my chemo and steroids...
Hi my mum has multiple myeloma, diagnosed 2.5 years ago she's been a remission once for 9moths after valcade and Dexamethasone. When the myeloma came back in March last year she was very ill after first month on chemo and was in hospital and was told...
Well tomorrow Monday will be my 4th week of chemotherapy, I'm starting to see a pattern of Monday to Thursday feeling rough,hiccups, 3 hours sleep per night, hyper and then by sat and Sunday feeling OK but knowing its about to start again. Does it get...
Here we are having gone through my SCT (March 2020) and been in remission for a year and 2months. SCT not a great success, had my review to be informed that my Myeloma was back and that I have a more aggressive form of Myeloma. Great!. I could have...
Hello, I have come here today to see whether talking to you about Myeloma (blood cancer) and hopefully develop some ways of coping with the fact that my Dad has it. While my Dad has been diagnosed with Myeloma for 6 years (I think - he told me a year...
