Recent diagnosis disbelief and scared

  • 6 replies
  • 40 subscribers
  • 2141 views

I am 69 in my second marriage with 2 daughters and 3 lovely granddaughters from my first marriage and a son and 2 granddaughters from my second.

For several years I have been receiving blood tests for paraprotein levels recently which had reached 19. No concerns till I said on my last review that I'd had what I thought was gardening for some time. CT scan revealed lump on spine I was rushed to hospital had radiotherapy and steroid. Suffering back pain but its reducing. Still hard to accept the word incurable in my mind though some of the emotional volcano is reducing. Hopefully prognosis will be good at the meeting before my first chemo tomorrow. Scared of side effects but  has to be done. Wish me well on my journey.

  • Hi bjseagull,

    Welcome to the forum and I will certainly wish you well on your journey, even though I wish it was a journey you didn’t need to make. I’m glad the emotional volcano is reducing, I find that time is a great healer although you may find it a bumpy ride for a while. Here’s hoping that the treatment goes really well and that the back pain continues to get better.

    All the best

    Greg

  • Hello bjseagull  I’m just looking through posts and came across yours.  How are you doing at the moment? Are you much further on? I was diagnosed with Myeloma May 2020 and I am waiting on a SCT. Unfortunately I’m back on oral Chemo at the minute because the disease became active again due to the wait. Covid had a play in that!!!. I would love to hear how you are coping with this rocky road. Best Wishes

  • Hello lovely, I've just seen your post. I do hope that you are doing well after almost a year & that things seem less scary now.

    Sending you lots of hugs.

    Penny

    Xxx

  • Hello Penny, thank you for asking, yes, much better now. The scary has gone away, naturally apprehensive of what will come but not scared. In those first days and weeks we try to make sense of it all. 

    Things moved on, MDS and that became AML. Medication is keeping me well and active andI am on track for a stem cell transplant sometime in the summer.

    Sunshine entered my life because of this illness - I found my long lost daughter and discovered I have a granddaughter. I have not met them yet, but we are in happy touch.

    Hugs back for reaching out.

    John xxx

    1. OMG ... How wonderful! So exciting for you & what a delightful distraction for you!

    Hugging