Covid

Hi J19, just read your message and wanted to reply, to hopefully make you feel a bit more secure. Boxing Day 2020 my husband was taken via ambulance into hospital because of the pain in his spine (we now know he had four broken vertebrae). While in hospital he caught the Delta COVID and it was an incredibly scary time as the Myeloma (which was very high at 80%) was raging through his bones and although he was due to start chemo he hadn’t at that stage. The chemo was delayed for two months and I was so worried as to whether he would survive. Fifteen months later he is still with us after completing six cycles of chemo and a stem cell transplant. I know you must be feeling scared but hopefully hearing my husband’s experience might allay your fears a little and you’ll be able to start your chemo again soon.

Hello J19 

I'm so sorry that you've caught Covid - especially with everything else you're having to deal with at the moment.

If it helps, I caught it about six weeks ago and my symptoms were exactly the same as you describe .... so I hope you can relax about it turning into anything else 

My partner finished his fourth cycle of treatment a couple of weeks ago and is waiting to find out what the next phase will be. He is very nervous about it and often quite low ... and certainly went through deep patches of paranoia while he was receiving treatment. That is definitely one of the possible side effects of all the drugs you are on.

I do hope you have loved ones and/or good friends nearby to give you lots of love and support?

My Covid lasted two weeks and the symptoms didn't get any worse. I must warn you, though, that even after I got better my brain felt a bit 'foggy' for a few days .... so please don't panic if that happens.

Here for you if you need someone to talk to.

Take care and keep safe & tucked up in the warm.

Big hugs.

Penny x

Thanks Penny,it's the twists and turns along the journey that I struggle with. Seems to be constant reactions and phone calls to hospital regarding the drugs.Even a large rash on Tuesday after chemo in my stomach..If your partner would like to chat to someone in the same position it would  be welcomed. 

Thanks John

I wish he would, John, but he is very closed at the moment. Then he worries but still won't talk to anyone. It's been very lonely at times. I do hope you have someone to talk to?

Regarding the reactions to drugs, phone calls to hospital, etc ... My partner has also been through this ... and I get the impression that it is quite normal for the drugs (or their dosage) to be changed more than once. It must be very unsettling and frustrating and my heart goes out to you. 

Are you also having trouble sleeping? He also suffered with insomnia, mood swings, low blood pressure, constipation, and several other side effects.

All kinds of things go through your mind when you're laying awake. It's horrid and I'm so sorry.

I hope you manage to get off to sleep and forget about everything for a while.

Big hugs

Penny

Morning Penny,yes you guessed it..I usually sleep in 1 1/2 hour slots although now they've increased the thalidomide to 100 I may get 2 hours I am fairly positive most of the time although it can be emotional in the early hours..If anything I thinks its the drugs ie steroids that wake me up.thanks again Penny and hope you and your partner are ok

John

Thank you, it is very reassuring. Hopefully it's only delayed for a week.

Hello John.

 I haven't been able to log in for the past week or so ...

I hope you are recovering quickly from that rotten virus and feeling more positive. 

Penny

Hi Penny,if anything I'm  feeling worse now than last week,my consultant is calling me in the morning so should no more then.Thanks for asking and hope your partner is OK.. 

Oh no, I am so sorry to hear that. It took me a good two weeks+ to get over it ... one symptom followed another. It was weird. Even after that, I still felt foggy brained and quite paranoid too. I'm so sorry it's dragging on. My partner has been very down lately, thank you for asking after him. I really hope he will feel able to have a look on here one day and  shhare his feelings with people who truly understand what he is going through.