New here dad with Myeloma

Hi Foxy Little Minx and welcome to this corner of the Community although I am always sorry to see folks joining us. I noticed that your post had not received a reply yet so thought I would drop in past.

I am Mike and I help out around our various blood cancer groups. I don’t have Myeloma but was diagnosed in 1999 with a rare, incurable but treatable type of Skin NHL (CTCL) Stage 4a so although my blood cancer ‘type’ is different I know this journey rather well.

It's a hard time for you and you may well benefit from talking with others through the practical and emotional challenges of supporting someone on their cancer journey you may benefit from joining our supportive Family and friends, Carers only and Supporting someone with incurable cancer groups where you will connect with others supporting family and friends

The Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00 or via Webchat and Email too. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear. You may also find our Ask an Expert section helpful but do allow a few working days for a reply.

Talking to people face to face when on a cancer journey (patient or family) can be very helpful but during these strange times it’s not that available but do check to see if any Local Macmillan Support in your area has opened up. Do also check out for a local Maggie's Centre in your area as these folks are amazing.

Always around if you need further help in navigating the community.

All the very best ((hugs))

Hi Foxy Little Minx,

I just stumbled across your Post and just want to say am so sorry to read abt your situation. How are things today? I hope you are surrounded by Friends Family members or just any sweet person who is around to listen and be there. My dad got diagnosed last August and has just finished his 6th chemo cycle. SCT about to start in a couple weeks. So I know this stupid illness and the situation for us who are close relatives. Sometimes I have to face the truth that so many people outside of our „Circle“ cannot understand that it is indeed terrible also for grown up children of patients. i am 36 and my dad in his mid sixties and just today a „friend“ complained that I dont spend enough time with her…  Anyway. Just to let you know. You are not alone!  Wishing you the very best.

Hi there, my dad is also kid 60s and 40. Funny I'm finding it hard hearing people complain about the little things like they need to go shopping, or the children didn't sleep and I think REALLY! I wasn't prepared for the amount of transfusions and infections he was going to get along the way. His transplant has been postponed now as he's too weak at the moment. Seems never ending, thank you so much for messaging x

Hi Asta_Asta and I see it's your first post so welcome.

I am Mike and I help out around our various Blood Cancer groups but more importantly in light of your post - in our dedicated Stem cell transplant (SCT) support groups.

This group is a safe place to talk with others who have been through SCT, are going through SCT or who have supported family on the SCT roller-coaster.

I will keep an eye open for you in the group.