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Hi Everyone I'm 55 and live in Germany with my husband, 2 dogs and 1 cat. I'm from Edinburgh and really miss living in Scotland. I was diagnosed with MM late April and I'm just about to start my 4th cycle of introductory chemo on Tuesday. the plan is...
Hi all. just an update. First visit for chemo. Marathon of a day 6.5 hours in hospital. Great nurse. And a few other engaging patients. Comfy chairs. All injections easy. glad I took an I pad. And books. A few snacks nursing staff busy. But...
Hi All. One year on from diagnosis, and subsequent treatment. Been a difficult time but now on maintenance drug and hopeful of a decent period of time before inevitable relapse. Living every day as it comes.
I was diagnosed with Myelofibrosis in Sept 2022. I have been in hospital since 23rd June and have had one round of chemo. I’m due to start a second round on 21st August. My stem cell transplant is due on 31st August. I’m so fed up in hospital and being...
Hi newbie here reaching out to say hi. I was diagnosed with MM in Aug 2019 after needing emergency cord compression surgery on my spine. Drs had been telling me for weeks the intense pain I was experiencing was just sciatica but if I ever experienced...
Recently on a routine blood test it was revealed that I have “mildly raised” Kappa light chains and a Kappa/Lampda ratio of 2.1. I am a 70 yr old male and tests were done as my kidney function had dropped but that seems to have improved. I have been told...
Hi everyone. Hope you're all feeling OK. I'm Glenda, 51, from Mitcham, Surrey. I was diagnosed 2 years ago with myeloma. Big shock. Had 4 months of chemo which led to 4 months of remission. Then had 12 months of intravenous chemo as I chose not to have...
I have just joined as my husband has just been newly diagnosed with multiple myeloma. I hope to understand and support him in these times. Also, to share my experience and ask questions and rat least understand what he is going through.
Hello everyone! Just wondered if anyone of a similar age has been diagnosed with Myeloma and how you’re coping?
I have been on the online community for 15 years being diagnosed with breast cancer in 2008. My best friend of 57 years has now been diagnosed with MM. I know this as it was on her discharge notes from the hospital but she is unaware at the moment....
