Hi All. One year on from diagnosis, and subsequent treatment. Been a difficult time but now on maintenance drug and hopeful of a decent period of time before inevitable relapse. Living every day as it comes.
Hi DB13 and a warm welcome to this corner of the Community although I am sorry to see you joining us and hear about your diagnosis and the thoughts about relapse in the future.
I am Mike and I help out around our various Blood Cancer groups. I don’t have Myeloma but I was diagnosed way back in 1999 with a very rare (also incurable) but treatable type of Non Hodgkin’s Lymphoma (Stage 4 in late 2013) so although my Blood Cancer ‘type’ is rather different I do appreciate the challenges of living with an incurable blood cancer.
There are a few active group members at the moment so let’s look for them to pick up on your post. Do click on the main ‘Myeloma Group’ title and this will bring up all the group posts. Have a look at the posts and as always you can hit reply to any post and connect in with the wider group conversations.
Our Support Line teams are available 7 days a week, 8am-8pm on freephone 0808 808 00 00where you will find one of team there to help you out. We also have our Ask an Expert section but do allow a few working days for a reply.
For good information do check out Myeloma UK who produce very good information and run various support platforms including their Buddy Scheme, they also have a Support Line on 0800 980 3332
You may also want to check to see if you have a Maggie's Centre in your area as these folks are amazing and most centres do run monthly Heamatology Support Groups, the one I attend does have a few folks with Myeloma in it so worth checking.
Always around to help more or just to chat.
Hi DB. 13. MM ? I have just started my journey. Cycle 2. This week. I am finding VELCADE. knocks me around a bit. But I rest when I can. Any advice on insomnia?
Glad to hear the positive thoughts. And the journey we all go on with our support network. Long May your good health continue. It’s nice to hear about it. Thanks. Kevin.
