26 newly diagnosed with Myeloma

Hi Myeloma.Mummy and a warm welcome to this corner of the Community although I am sorry to see you joining us and hear about your diagnosis.

I am Mike and I help out around our various Blood Cancer groups. I don’t have Myeloma but I was diagnosed way back in 1999 with a very rare (also incurable) but treatable type of Non Hodgkin’s Lymphoma (Stage 4 in late 2013) so although my Blood Cancer ‘type’ is rather different I do appreciate the challenges of living with an incurable blood cancer.

Let’s look for the group members to pick up on your post. There are a number of active group members at the moment so why not click on the main ‘Myeloma Group’ title and this will bring up all the group posts. Have a look at the posts and as always you can hit reply to any post and connect in with the wider group conversations.

Our Support Line teams are available 7 days a week, 8am-8pm on freephone 0808 808 00 00, email or live webchat where you will find one of team there to help you out. We also have our Ask an Expert section but do allow a few working days for a reply.

For good information do check out Myeloma UK who produce very good information and run various support platforms including their Buddy Scheme, they also have a Support Line on 0800 980 3332

You may also want to check to see if you have a Maggie's Centre in your area as these folks are amazing and most centres do run monthly Heamatology Support Groups, the one I attend does have a few folks with Myeloma in it so worth checking.

Always around to help more or just to chat.

Hi.     I am also new here.  MM. recently diagnosed.  TheHighlander gives good advice   And guidance.      I am 66.  Male.    Waiting for first. Cycle of chemo.      Daily life has changed but not mattitude to fighting it.    Eating healthy.   Staying as mobile as my. Lesion damage hip will allow.      Doc says I am young and fit       Besides.  Macmillan help ( I got a support call last week).  There is the myeloma.org.   That have great advice for every step of the process.    I look at it as a  steeplechase.     And I have just left the start.     Please reach out. You are not alone.         Kevin 

Hello Myeloma.Mummy

i have had my SCT in Sept 2021 and I am doing well. No one gives better advice than the Highlander and those who have gone through it.I am happy to answer any question regarding my experience. 

Every  Best Wish to you

Hi Vespa

I love your attitude. Good for you. It will stand by you going through the SCT journey

Best Wishes

Hi. I don't know how old you are but I was diagnosed with myeloma 2 and a half years ago.  I started chemo for 4 months then went into remission for 4 months.  Then, as I decided not to have the transplant,  I undertook 18 months of chemo but stopped after a year. I ve been in remission for over a year and also stopped maintenance meds a few months ago. I trust God.  Yes it was scary at times but I met some amazing people along the way and hardly any side effects. You ve got this. Try to be positive.  Lots of love x