Peripheral neuropathy

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Had my chemo just over 4 years ago, the major problem I have is with neuropathy caused by the drugs,

it is an absolute pain, literally Blush but nothing I have used is sorting it. I have tried Gabapentin, Amitryptoline and Pregabalin. Whilst they alleviate some of the symptoms, Pregabalin being the best, I still suffer from feeling very cold in my hands and feet and sometimes feel as if I’m walking on balls instead of feet.

any suggestions please 

  • Hi Oldwoodsie

    I have been left with peripheral neuropathy after my chemo in 2022.

    Have you had a physiotherapy assessment?

    It might be worth considering one. I paid for one privately and was given an exercise programme and general advice. It was also helpful to see someone professionally and talk through the neuropathy. Although the physiotherapist said that the neuropathy could not be cured, I did find that the exercises are slowly having an effect. 

    Jane

           

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • Hi Jane, 

           Thanks for getting back to me,  I will look into getting an assessment. 

    I have a new GP and we are looking at different treatments.

    Best wishes

    Mike

  • Hi Oldwoodsie I have neuropathy in my hands & feet I had treatment 2 yrs ago. I take Pregablin I walk  daily the walking does help a lot I also do leg & feet exercises which also helps. Good luck.

    jacquie

  • Hi, I have terrible neuropathy in my feet and lower legs.  I take 600 mgs of pregablin a day which does help but I don't think the feeling will ever return.  I massage my feet and legs with bodyshop hemp cream which does seem to soothe them and I always wear Skechers slip ins outdoors which are reasonably comfortable.  I think it's something we have to deal with unfortunately  but it's a small price to pay to be in remission, we'll that's the way I look at it.  Hope this  helps.  

  • Thanks Jacqueline x

    Mike

  • Bunky

    great positive thoughts, we are in remission for which we are grateful, I wake up each morning and say thank you for another day.

    it is a small price to pay, bloody inconvenient, but still a small price.

    very best wishes

    Mike