Peripheral neuropathy

Hi Oldwoodsie

I have been left with peripheral neuropathy after my chemo in 2022.

Have you had a physiotherapy assessment?

It might be worth considering one. I paid for one privately and was given an exercise programme and general advice. It was also helpful to see someone professionally and talk through the neuropathy. Although the physiotherapist said that the neuropathy could not be cured, I did find that the exercises are slowly having an effect. 

Jane

Hi Jane, 

       Thanks for getting back to me,  I will look into getting an assessment. 

I have a new GP and we are looking at different treatments.

Best wishes

Hi Oldwoodsie I have neuropathy in my hands & feet I had treatment 2 yrs ago. I take Pregablin I walk  daily the walking does help a lot I also do leg & feet exercises which also helps. Good luck.

jacquie

Hi, I have terrible neuropathy in my feet and lower legs.  I take 600 mgs of pregablin a day which does help but I don't think the feeling will ever return.  I massage my feet and legs with bodyshop hemp cream which does seem to soothe them and I always wear Skechers slip ins outdoors which are reasonably comfortable.  I think it's something we have to deal with unfortunately  but it's a small price to pay to be in remission, we'll that's the way I look at it.  Hope this  helps.  

Thanks Jacqueline x

Bunky

great positive thoughts, we are in remission for which we are grateful, I wake up each morning and say thank you for another day.

it is a small price to pay, bloody inconvenient, but still a small price.

very best wishes

Hi Oldwoodsie .  Have you tried silver socks they really help with the cold feet .  My husband has MM and has had stem cell transplant sept 23 also on Lenalidomide 10mg maintance he also has diabetes so has always suffered cold feet neuropathy so about 3 years ago I brought him several pairs  that are lined with silver he wears them every day and has shorter trainer ones he wears at night and I can honestly say he hasn’t suffered with cold feet since he also uses an EMS machine that stimulates the leg muscles ( like the one a famous cricketer advertised on tv) it might be worth checking with your consultant /physio their views as to the possible merits of using one but despite already being predisposed to neuropathy through diabetes he doesn’t seem to suffer . Wish I could find something to help him with the upset stomachs though . 

Hello Kent Lass and thank you for taking the time to respond.

I am going back on to chemo in the next month and part if that will be Lenalidomide.

I am certainly interested in the socks, so will be looking those up, thanks gor the tip.

I have looked at the EMS machine, lots of different ones around, so a bit to think on.

I suffered from upset stomach during my first round of chemo, not a lot helped, but it did get better . 

Initially everything tasted metallic, then the constipation, that needed a hospital visit, but I got through it by eating exactly what I wanted, when I wanted. A lot of sweet things, ice cream, cakes, chocolate, etc. The advice from my consultant was to eat anything I wanted, as junk good is better than no food.

I used Complan to try to put weight back on and cajoled by my daughters, drank a lot of filtered water.

I think that cancer sufferers carers are absolute heroes, I know my wife certainly is.So as the Americans say " thank you for your service"

When I get the socks, I will post it.

Wishing you and your husband the very best.

Lots of love

Mike

Good luck hope the socks work as well ad they have for my husband .  Ps when you get them they look ultra fine don’t be mislead into thinking they won’t work the ones my husband have are made I think by carnation and they are super hard wearing keep feet warm but wick away sweat and are not thick and heavy . 
Regards Chris

Hi Chris, 

I am in the process of looking for the correct socks, but have tried similar socks my wife used for her varicose veins, they seem to doing something,  legs and feet warmer, not so much tingling/ pins and needles, so hopefully using the ones you suggested I might get the relief I am looking for, so thank you. 

Just in a similar vein, I use a type of elasticated,  fingerless gloves for my hands which are always cold and find them to work very well for me. If your husband suffers with neuropathy in his hands, these might be useful.

Good luck and best wishes to you both....Onwards and upwards. X