Just started treatment for myeloma

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Hi there first time posting. Got diagnosed with Lga Myeloma High Risk February 2024 and been on watch and wait. Just about getting  my head around that and told its progressed so had first chemo on 15th May 2025. Have to have it weekly. Going to do 4 months then stem cell transplant then 2 months. Was just wondering if anyone else had gone through this and could give me advice or info. Don't really know what to ask,think or say just kinda on autopilot. Just wanted to see if there was anyone else who had this and could maybe share their experience so I have an idea of what to expect etc and so I could feel not so alone and lost. Thanks

  • I just had my 3rd treatment today. The nurses said side effects get worse after 2 to 3 weeks of treatment but I don't really know. It's all pretty new to me. We are kinda at the same place just starting treatment.

  • Thankyou for reply and good wishes. It feels nice knowing there are other people out there who are happy to share their experiences to help others going through the same

  • So pleased that people have responded with support and positivity. I am glad that you are enjoying life and willing to help me to get my head around it all. Thankyou very much

  • Thankyou for reply and saying I am not alone. I think that is how I felt. Kinda adrift and floating around not knowing what to expect or feel. You have made me feel better knowing that you have gone through it and are willing to help with information as I haven't had anyone to speak to. Thankyou Sue

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