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I am at "the highest risk of progressing to active MM within 2 years" according to the hospital. I would be pleased to connect with someone in a similar situation and learn how you manage the uncertainty and find hope and acceptance.
Hello. I had a stem cell transplant in April and I am now being offered either the standard maintenance drug Lenalidomide or a trial one called Iberdomide. Does anyone have an opinion which they think is preferable? Many thanks. Paul
Hi to all Vespa i am now 17-18 months post Stem cell transplant, after 2 more cycles of DVTD i went onto Lenolidamide, after 3 cycles and a bad skin reaction, itch rash, the dose w as reduced from 10 mg to 5 mg, this helped, but became intolerable again...
I was diagnosed on 01/07 with multiple myeloma. I am just awaiting my treatment dates but have had biopsy, mri and ct scan. I’m due to have chemo and then a stem cell transplant I am still at the blubbering stage. I can’t speak to anyone about it without...
Hi everyone, After 4 months of chronic back pain - 2 weeks ago I was admitted to hospital- a whirlwind of tests, scans, biopsy. I have been diagnosed with Myeloma which has fractured my spine. I had one dose of Radiotherapy to spine. And on Tues...
Hi I joined the forum today but was also a member in 2021. My sister had the ‘good standard’ treatment for multiple myeloma in 2021 and has had 4 years of a great life with the expected adjustments. She has been unwell for the past 4 weeks with diarrhoea...
I found myself back on this forum after a decade since my dad was first diagnosed with multiple myeloma. I saw how many people are posting about being newly diagnosed and the fear and uncertainty. This disease is tricky and there is a spectrum of responses...
My husband has been in good remission a year after his first lot of chemo and then stem cell transplant and is on lenalidamide maintenance treatment. He's been having his childhood vaccines, several of which made him feel quite poorly. Over this time...
Hi All i relapsed 2yrs after my 2nd Stem Cell Transplant I have high risk Multiple Myeloma I was offered to go on a clinical trial it is a phase1 trial study. I started on 27th May it is a immunotherapy drug that will target 3 parts of the myeloma it...
I have recently had abnormal protein levels in my blood tests. Thankfully to a marvellous doctor he refered me onto the 2 week wait referal to see a haemotologist. Ive had a ct scan and saw my consultant yesterday.My ct scan is normal and all other...
