Multiple myeloma relapse

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Hi all,not posted for quite a while.

I was told in early September that my myeloma as relapsed and I would have to start treatment again,so after some discussion with my consultant we decided on D.V.D Treatment was the best way forward for me.I have now started treatment, side effects are tolerable at moment except for tingling hands which I have been told you can get gloves for but the only ones I could find online were more for arthritis and carple tunnel,I have ordered some of them to see if they help"if anyone could advise on this matter I would appreciate it.

I'm a bit concerned what the future holds regarding this treatment because it seems more intense than my previous treatment which was V.T.D treatment followed by stemcell transplant which I feel have left me with a few other health issues so not as fit as first time round "if anyone could advise on there experience would be great,I know we are all individual and can react differently towards treatment and meds.

Many thanks in advance little G

Vespa 1 month ago

Hi. Kevin here. AKA Vespa. I am 9 months post stem cell and in Remission and on Lenolidamidee maintenance drug The tingling sounds like peripheral neuropathy like pins and needles? I take Pregaling for this It helps Mine gets worse in the afternoon And my feet Some of the meds side effects make it worse. If you had a stem cell harvest they may have collected enough for a second one ? I found the DVTB. treatment also ok And is slowly reduced the MM And I am sure the same will happen for you I hope they can get you back on track I follow what is approved by NICE for 2 nd line of treatment and it is worth the effort Best wishes. Kevin

Little G 1 month ago in reply to Vespa

Cheers for your reply and info,already spoken to the consultant who did sct he said he wouldn't recommend it in my case.I started taking Lenolidamidee but turns out I'm allergic to it so had to stop, I was just short of 2 yrs post stc before I relapsed. Hoping you have a better outcome

Many thanks, best wishes Gary

Hi all just joined ,just starting my second week of treatment so still not sure what to fully expect from meds. Time will tell.

Chicken2 1 month ago

I started on DVD plus lenalidomide.

I had tingling and cramp in my hands when I started treatment. I didn't buy anything special: just tried wearing a light pair of gloves, and that was enough.

I also bought - and this was a spur of the moment purchase - a pack of 6 table tennis balls from Sports Direct. I didn't take the balls out of the packet, but used the packet to rub against the back of my hands to ease the cramp. It sounds strange, it was strange, but it worked until the side effects went away. Still in remission.

As you say, experiences vary, but this has been mine.

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