Hi , I'm Debbie, aged 63 and was diagnosed with Myeloma in 2019. I had a stem cell transplant in April 2021. I'm on my 26th cycle of Lenalidomide maintenance. I'm doing really well but the general fatigue is getting worse. Does anyone know whether this...
Hi all, Have been diagnosed and waiting on mri and starting of treatment. I am beginning to retain fluid, weight increase, blood pressure increase and breathing issues. Should I wait for my next appointment on the 20th or speak to someone on the team...
Hi I am a 60 year old female. I hope you guys don't mind me being on here with not yet having been diagnosed. I had a myeloma blood test about a year ago on the basis I was getting a lot of rib pain. I know the M protein is present in people with...
I have just spent a week having a days intense chemo followed by 9 GCFS injections preparing for my autoglas stem cell collection. The injections caused me to have severe spasms down my lower spine and pelvic area which radiated up my spine. These were...
Stem Cell Transplant Good day everyone, my husband is going into hospital next week for a Stem Cell Transplant. He’s having this carried out at Blackpool Victoria hospital. I’m just wondering if anyone else on the forum has experience here. I’m wondering...
I am on my 3rd cycle of treatment for MM and I'm getting really tingly fingers and feet. It seems to be getting worse with each cycle. My nurse says it's neuropathy. I find it difficult to feel if things are hot or cold. Any advise on how to manage this...
Hello, I'm reaching out because my Dad's chemo has been stopped, and the doctors have told us that it won't be long before he slips away. I don't want to believe it and can not believe my Dad, who has always been such a strong, quiet, honorable, hardworking...
Late last year (2022) I was admitted to hospital suddenly for 11 days for Iron Deficiency Anemia, had blood transfusions and iron infusion, daily blood tests, Myeloma was being considered as a possible diagnosis. An MRI scan couldn't be done as I have...
Hello I’m new here and have smouldering myeloma no treatment as yet I’m on watch and wait . My question is can smm cause itchy skin without a rash driving me crazy
my wifes on her 4th week of treatment atm but i have recently noticed her spine is protuding near the base of her back ? is this down to her losing weight or it is something we should discuss with her care team ,has anybody else experienced this
