I have just spent a week having a days intense chemo followed by 9 GCFS injections preparing for my autoglas stem cell collection. The injections caused me to have severe spasms down my lower spine and pelvic area which radiated up my spine. These were truly painful an debilitating. I was really concerned at first that I had perhaps trapped a nerve or worse. But was advised that they were related to the GCFS injections where they producing the stem cells and these were collecting in my bone marrow, unfortunately in those areas. I felt completely and utterly in despair when these were happening as they just took over my entire body and made me feel completely helpless
I wanted to post this because after having my stem cells collected these spasms have now ceased. So if anybody else goes though this experience, please be ensured that they will go away once the injections stop. Two days of sten cell collections and feeling utterly drained I now feel like a free person..... Here's on onto the next stage.
Sorry to hear this and its frustrating that teams don’t use all the medication available to help reduce the effects of the G-CSF injections.
I had G-CSF Injections for 4-5 days after my 6 cycles of R-EPOCH and daily for 4 months following my second Allo (donor) Stem Cell Transplant and my brother, donor went through the same process as yourself - twice for both my Allo SCTs
These injections are designed to ‘wake up’ your bone marrow but unfortunately there are side effects like bad bone (my nurse called it bone marrow birthing pains) and also excessive histamine production.
But my brother and I were prescribed Antihistamine like Piriton or Clarityn by our various clinical teams as this bizarrely stopped most of the pain developing (reducing histamine production)….. it turns out that not a lot of hospitals do this.
