Hi I’m on my last 6 weeks of DVTD after stem cell , my consultant has said I will need to go on maintenance drug Lenalidomide, I’m so worried about side effects, is anyone on here on this and can reassure me
Hi All, I was sent to Aberdeen RI on the 13th for pre harvest checks and to introduce me to the equipment at the blood transfusion centre. I was getting my Cyclophosomide priming on the 20th and harvest was booked for Edinburgh RI on the 27th, my good...
Just had diagnosis confirmed and due to start treatment in a couple of weeks, apart from tiredness and some fatigue I still feel OK. I would like to ask if anyone has managed to carry on at work through the treatment and if so how did it affect you...
Hello everyone, I am here in this forum on behalf of my elderly mother. I hope you don't mind. She was first diagnosed with Myeloma in 2006. It didn't need treatment at the time but now it does. She has been on very strong chemo drugs for about 9...
Hi starting treatment in two weeks, terrified. I realise there isn't ever one treatment for this illness but I am wondering if anyone can tell me what treatment they started on and for how long, maybe I am not asking enough questions but although I...
Hi. Just an update. MM Treatment ongoing cycle 3 started last week. Consultant happy with blood counts. STC. now applied for in Birmingham for early 2024. STC. Nurse briefed me some m re on what to expect. My son’s wedding in Australia took place last...
Hi all. just an update. First visit for chemo. Marathon of a day 6.5 hours in hospital. Great nurse. And a few other engaging patients. Comfy chairs. All injections easy. glad I took an I pad. And books. A few snacks nursing staff busy. But...
hi my wifes on a current break from chemo for myeloma as it was getting too much .however since then she has pushed everybody away as in wont see or speak to anybody because of the way she looks . shes now refusing to go to hospital visits im at my wits...
I have been on the MM. forum before. And it seems kinda quiet. So thought I would start a post my first chemo cycle starts next week D-VTD ? Might have that wrong blood sample given this week Chemo phone prep call tomorrow first course next Tuesday...
Hi. Recently diagnosed and first chemo cycle coming in August 23 Can anyone share if they attended all appointments alone. And able to drive Ito and back home again. My journey wound be 30 minutes each way. Also I was due with extended family to visit...
