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My husband was diagnosed in June 2019 at the age of 68. He had never been ill in his life so it was a complete shock. He had six rounds of chemo which he found very difficult. But we then had six months of "the new normal" life. In June 2019 he had disease...
So just saw that although NICE was supposed to be meeting to decide whether they will fund combined immuno-therapy for mesothelioma, this has now been put off till April, Although it has had very good results in trials and my consultant advised that this...
We have just been told my husband has mesothelioma but he has not had a biopsy yet. He was very poorly 6weeks ago and had fluid drained. But he looks fine now? I am not sure how this progresses and am wondering if he does actually have this. Until biopsy...
Hi all… Hoping for some guidance and advice. My partner is Australian and we currently live with our young daughter in the North East of England. My father in law has been diagnosed with Mesothelioma and is starting immunotherapy on Thursday. He seems...
Hi, my grandad, 74 has been diagnosed with sarcomatoid mesothelioma in the lining of his lung & is struggling so badly, he has no appetite weve tried every bit of food he says he fancies but then can’t eat he is just skin and bone & feel like he’s deteriorating...
Hi my dad was diagnosed with meso in March 2020 and given a very poor prognosis as it was advanced and he is 82 years old. We are just about coping but I wondered if anyone else had noticed a change in their voice? Just today dads voice seems much deeper...
My husband has mesothelioma & has an appointment today. On/off very very tired, not eating a great deal, think today, we will get the news that he's not suitable for chemo. I'm dreading taking him. I'm trying to remain positive he's just fell asleep again...
I’m devastated I feel I’m watching him fade away in front of my eyes, he’s not eating much and losing so much weight he’s just had his first chemo last week my daughter is becoming more and more withdrawn she has Down syndrome and has limited und...
Just had my diagnosis confirmed on Monday. All came out of the blue. Trying to be strong and positive but it's hard. How do others cope?
Hi everyone, I am so grateful to have found this forum. It is heart warming to see people supporting each other so much. My Dad has been diagnosed with this horrendous disease this week after months of tests. I was wondering if anyone could share...
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