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Hello all, I was diagnosed with pleural mesothelioma last October. Since then I have had three sessions of immunotherapy but this has been stopped because of side effects. Oncologist has now recommended I shift to chemo and, after much thought, I have...
My Dad was diagnosed with Epithelioid Mesothelioma about 6 months ago. They decided to start immunotherapy and he had two or three rounds then he started to have a really bad upset stomach that went on for a few weeks so they said he couldn’t have treatment...
My dad’s pleural mesothelioma was picked up very early—just a 1 cm nodule found on a routine scan because he used to smoke. At first the doctors called it a “mild” form, but the pathology soon revealed it was an aggressive subtype. We explored options...
Hi - my first time posting. I was diagnosed with pleural mesothelioma in November 2023. I was lucky and didn’t need treatment just CT scans every 3-4 months. In September 2025 I was started on immunotherapy. This helped reduce my small tumours but unfortunately...
Hi Everyone , anyone have bad depression episodes after chemo. I suffer badly from it after about 3 weeks from last chemo. How do you cope if you do?
Hi, meso in pleura in my back to start, left side chedt.10 months since treatment had to end . Slowliy started to get more pain/soreness in my chest under my arm, then pain bottom of rib right chest ribs but only 2:3 days later getting pain in lower left...
Hi all. I know this question probably doesn't have an answer but looking for other people's experience I suppose. My Dad has already defied all the odds after being diagnosed with pleural mesothelioma almost 3 years ago. All treatment was stopped over...
My husband is 58 years old and has never smoked. He has had exposure to asbestos in the 80s and 90s at work. In Feb a xray picked up a lung nodule and he was sent for a CT scan which confirmed this. He had another CT scan at the end of August to see if...
Hello there fellow - very rare and therefore special - peritoneal mesothelioma people. I've had quite a journey getting a diagnosis, having spent 2.5 years being told I had End Stage Liver Cirrhosis and not being referred to a Centre of Excellence....
Hi All, I don't know what I want out of this really, but feel I need to write down some of my thoughts /share my experience with people who understand. I lost my dad on January 6th to this cruel disease and it's only just starting to feel real now...
