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Completed third cycle of immuno, Pembrolizumab, Nivolumab. Side effects have been few, but Fatigue has been one. Can spend 12+ hours regularly in bed, upto 16 at worst. Cancer nurse has said if your quality of life is too impaired, they may look at...
Hi, I am new to this board and do not have mesothelioma or any other diagnosis relating to asbestos. I have read through other topics on this forum and can see that my post is not typical, I hope that by posting this I am not offending anyone. I would...
Hi everyone. I'm part of this forum, due to my dad sadly being diagnosed with pleural mesothelioma 2 years ago. It wasn't detected straight away.We had to wait for at least one year before the doctors confirmed that it was pleural mesothelioma. Since...
I was diagnosed with Peritoneal Mesothelioma in May of this year ( I had symptoms in March, but so uncommon I gather it took them until May to find out exactly what it is ). I am currently undergoing palliative immunotherapy ( Nivo and Lipo ) but, I...
Hi Due to liver damage ( inflammation ) caused by immunotherapy and unable to correct , I am stuck on 20mg steroids and 3g of Mycophenolate ( immune system blocker ) to try and stop the immunotherapy in my system per day. So immunotherapy has been stopped...
hello all, Anybody had / knows of anyone that tried rigvir as an alternative treatment for mesothelioma sarcoma cancer? Looking into it but cannot find anyone who did try it if anyone has experiences to share, that would be great thank you ...
Hi, My Dad has been diagnosed with Epithelioid Pleurel Mesothelioma. We, as a family are devastated. Does it get any easier to cope with? Dad is going to be starting Immunotherapy soon to see if that can buy him some extra time. I've just been through...
Last year a follow up CT after a partial nephrectomy, identified a small dot near the heart,a further scan stated an abnormality.Pet scan was intensely avid or hot,and diagnosis was lung cancer.Operated on 30th June with a lobectomy of lower lobe open...
Hi all Just putting my current situation out there. Pleural Meso. Diagnosed Dec 23, as otherwise fit started immuno Jan 24 with usual 4months to possible year prognosis. Second treat major reaction, thought I had had it. Sirted with Steroid and Antihistamine...
Good Evening i am shruggling my dear dad passed away on 4 May . he suffered this disease for exactly 12 months and 10 since treatment. so cruel so unfair. Following terrible chest pain which they finally got on top of with higher morphine doses they...
