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Hi everyone, I genuinely cant think of anything except for things he might want to hear such as ‘you won’t be forgotten and it’s okay if you need to leave us’ although tbh I don’t think I’d really be able to get anything out of my mouth without bursting...
I have an inoperable GBM grade IV. Been having chemo. Did anyone with similar diagnosis have more than 6 months chemo and if so how long for? Please could you share any changes/improvement in symptoms experienced as a result Also what type of radiotherapy...
I have had 3 surgeries for my glioblastoma and have been on dex. steroids for 3 years. My last bebulking was March 1 2023 and i am now tapering off slowly. I have now reached 1mg and am experiencing nausea, fatigue dizziness, weakness and loss of appetite...
Hi - I’m new to this group and looking for some advice. My dad has terminal pancreatic cancer and in May my mum (who was looking after him) was diagnosed with a glioblastoma and given up to 6 months. Things seem to be getting worse very quickly for her...
My lovely mum has been recently diagnosed with stage 4 brain cancer. She has had surgery to remove as much of the tumour as possible and is now having 6 weeks of radiotherapy and chemotherapy (TMZ). I can’t help but think about what’s next.. from reading...
Hi All My partner has been diagnosed with stage 4 Glioblastoma for 10 months now. He's had debulking, radiotherapy and is now on palliative chemo. It's a very scary and stressful time, especially as he doesn't consciously accept that he's terminal....
Hi all, I've not updated much on where we are at these days because I feel the honest answer is "I don't know." When folk ask me how things are my standard reply has become "I am. He is. We are." People with no experience of these tumours just don't...
My husband has been newly diagnosed with Grade 4 Glioblastoma. He was diagnosed on May 14 2023 and had the operation May 16 2023. Before the diagnosis people were noticing that something was wrong with him - confused, vacant. He then complained of having...
Hello, This is my first post so apologies if this is in the wrong group/section. in July I was diagnosed with a GBM grade 4 idh wildtype negative. I’ve had 95% removed and 6 weeks of radiotherapy and chemotherapy tablet (TMZ). I’m shortly to start...
This has been such a difficult week for my family. Last night my husband had a seizure at home which the ambulance crew described as a grand mal seizure. I rang the oncology bleeper to find out whether we were going to our nearest hospital or the hospital...
