This year is doing its best to push me over the edge. As you know, my wife died in June with GBM. But that wasn't the first funeral I attended this year - a close friend who knew us both passed away in February and it was a sadness to my wife that she...
My husband is using TT Fields OPTUNE treatment for a Glioblastoma (diagnosed and removed at start of year ) along with maintenance chemo therapy and is convinced it makes him feel tired (even more tired than he would normally be just with the chemo tablets...
I thought I'd post as I don't often, but wanted to share a positive story of our experiences so far for anyone who is starting out on this journey. My husband was diagnosed with a frontal lobe GMB wild card, methylated tumour in May 2023.What followed...
My husband refused chemotherapy last month which made no difference to his fatigue at all, he had his operation in February, completely his radiotherapy then in May commenced the 5 days on & 23 days off. In April he was hospitalised for blood clots in...
It’s been 3.5 years now since Mum was diagnosed with a grade 4 Glioblastoma and was given a prognosis of 2 years. I must say the last 6 months have been extremely hard. Mums short term memory is terrible, meaning we are just on repeat constantly. Her...
My husband was diagnosed with Left temporal GBM4 Wildtype Methylation in September 2022. We are now at 4 years with no recurrence so he is now classed as a long term survivor. MRI’s have all been stable. He has left side weakness and mobility issues,...
Tomorrow, Friday 11th September marks 3 months since my beloved wife passed away with glioblastoma. Slowly, I am trying to keep the promise I made to her to "put my life back together" but I find it a great effort of will. I am riddled with guilt - guilt...
My partner keeps talking about all the things that he’s going to do next year. He was diagnosed with glioblastoma in May this year.He’s had the tumour debulked and has gone through a course of radiotherapy and chemotherapy. He’s going to have another...
My wonderful husband lost his fight last Friday evening. We were at home with all our adult family when he passed peacefully. I have cried but still feel like it’s surreal. I’m struggling to be able to remember what he was like before. The last 14 months...
My wife of 47 years died last night, two years and two weeks after the first seizure that led to diagnosis. The end was hard, her breathing had been rattling since yesterday morning and in the afternoon her mouth began to fill up with foam. It was most...
