Hi, I’ve posted before but just wondered if someone can share some information about chemotherapy. My partner was diagnosed in May and since then has had a course of chemo and radiotherapy which he coped with quite well. He’s now finished the first course...
Hello, In May 2026 my mother was admitted to kings college London with a right frontal space-occupying lesion with partial movement of the right basel ganglia and partially crossing the midline, of approximately 27 x 26 x 23 with moderate mass effect...
Hello everybody, My mum who is aged 61 was officially told she has grade 4 glioblastoma. It all started with her vision degrading quickly, she went to the opticians who referred her to A&E they suspected she had a cataract in her eye. After running...
Hiya This is my first post and hoping for some advice, experiences or just anything to stop me from feeling like I am going mad my 68 year old father was told on Tuesday he has high grade glioma very likely glioblastoma. This all come to light after...
HI All, I've just returned from Germany where I received this treatment. Happy to answer any questions.
Hi all, It's been a while since I've updated on our situation and I know how useful I find reading other's experiences (good and bad) so here goes: My wife has just finished her 6 months of temozolomide. It all went fairly smoothly. The last round...
Hi everyone, just after some reassurance/advice. My dad was diagnosed with a right frontal lobe gbm in July ‘25. He has had the SOC and completed the 6 weeks’ radiotherapy 10 days ago. He has been really well throughout all of his treatment and the...
Hi, I am a nurse and have been for nearly 30 years. My husband had what I thought was a fainting episode which was then wrongly diagnosed as a stroke and after 3 months of investigating they did a biopsy and he got the grade 4 glioblastoma diagnosis....
My husband was diagnosed with an inoperable grade 4 glioblastoma in Nov 24. He he’s had the standard treatment of 6 weeks radiotherapy/chemo, followed by 9 rounds of TMZ and latterly with 2 rounds of Lomustine. The tumour is methylated and initially responded...
hi everyone I guess I’m looking for some reassurance as the doctor has given us no hope. Mum has been complaining of whole body pains including her hips, feet and lower back. She’s also been having mild headaches but we all noticed a change of personality...
