My husband was diagnosed with Glioblastoma 2 years and 3 months ago. It has been a very emotional journey, not the way our retirement was meant to go. We were both still happily working until this hit us. I realise we are so lucky that he is still here...
Hi Recently diagnosed with a Glioblastoma, had debulking surgery 10 days ago. Have an appointment today to discuss the next stage of treatment, likely Chemotherapy and Radiotherapy.
My partner 39, died of gbm in July, was diagnosed in feb 2025, he underwent chemo and radiotherapy, was on lomustine also... we had been together 14 years, I cared for him right until the very end, he passed away 3 weeks before his 40th birthday , I watched...
Hello everyone. I’m 42 and my mum (68) has recently been diagnosed with glioblastoma. Mum was fit, healthy and active - no symptoms or concerns - until she had a seizure whilst gardening. Two weeks later, she had unsuccessful brain surgery. Surgeons were...
Hi this is my first post. My husband was diagnosed with grade4 glioblastoma in may. He has had an operation to remove as much as possible of the tumour and had radiotherapy and chemo. However he was due to have 2nd round of chemo and has said he no longer...
Hi everyone, this is difficult, I didn't find this group until a few days ago. My wife of 37 years was diagnosed in February 2024, after her first symptoms in December 2023 and operation in January 2024. Another operation followed in April 2025, was so...
My husband who is just 60 years old was diagnosed on Christmas Day with a Glioblastoma .He had a near complete resection in January but during surgery he hada stroke and has a Left Hemiparesis so is now needing to be hoisted in and out of bed and has...
Hello My husband was diagnosed in January after he suddenly became confused, he had surgery 2 weeks later and completed 30 days of radiotherapy. His chemotherapy has been paused due to bilateral PEs we are hoping it will be recommenced soon. His confusion...
Has anyone else found the limbo between knowing if presenting symptoms are a treatment side effect or a sign of disease progression? Loved one was told to reduce steroids but unfortunately we've had to go back to daily steroids as their presenting symptoms...
Living in Spain Husband having treatment for a glioblastoma grade 4 tumor. He was diagnosed in January.Tumor removed in February this year and has finished first part of treatment with radiotherapy and oral chemo .Now having a 'break' before he starts...
