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Hi all, we found a tumor in my mom’s brain on her 60th last week. She underwent a craniotomy and the surgeon was able to do a gross total resection (including some area around the 5 centimeter tumor.) It is GBM stage 4. I’m her daughter, and just at...
Hi everyone, My name is Alex, and my mum has recently been diagnosed with a Glioblastoma. An otherwise fit and healthy 60 year old, a few months ago, mum developed foot drop and left sided weakness. A few GP trips later and after chatting to the...
My husband is experiencing a second wave of tiredness following his chemo/radio treatment. He finished his first week of his 6 month's of chemo last week. Yesterday he slept all day and all night, waking up at various ponts for a short duration probably...
We've already had debulking surgery, 6 weeks chemo/radio and just finished a month following chemo/radio. On Monday I took my husband to his Oncology appointment. They ordered blood tests and made a prescription for temozolomide and anti sickness meds...
... and I thought I would introduce myself. I'm her husband. Isn't the whole situation awful?! Half two in the morning, I can't sleep. Wife is in bed sleeping. I feel guilty I'm down here when I should be there with her, should be getting sleep so I can...
Hi, New on this forum. I have been diagnosed with Grade 4 Glioblastoma (right side). Surgery on 2/5 and radio chemo due to start 19th of June. Sleep issues, and emotional rollercoaster namely experiencing rage and anger with the added sornkle of dispair...
Hi everyone, My mum had a cranioctomy 3 weeks ago to remove 4 tumours. The biopsy confirmed grade 4 Gliobastoma. The surgery went really well she just has a little confusion. She seen the consultant last Friday and he was happy with her progress and...
Can someone please help me. As many of you know, my mum was diagnosed in August with a GBM 4. She had 3 weeks of radio (reduced from an initial 6) She is unpredictable, confused and grumpy to say the least. It's tough going and we ignore it wherever...
It has taken me a while to find the confidence to write, but from reading your sharing I have found great comfort and support from this community. Sharing your experiences, bravery and wisdom has helped during some dark times. In September 2021 a bomb...
Hey lovely people! hope you’re all coping as well as possible. We are ok, husband doing relatively ok, in the middle of the 6 weeks intense radio & chemo… I’m dreaming of a holiday with the kids and him before he is too poorly. He is totally up for...
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