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Hi there, My mum was a very fit and healthy 78 year old when she was diagnosed with stage 4 glioblastoma. She had radio and chemo therapy. Her most recent scan after 6 months of treatment was good. We thought we had some time to relax and enjoy life...
Hello everyone I am new here .... my husband was diagnosed with a grade 4 glioblastoma in August. We are both Headteachers and were looking forward to our summer holiday with our two young boys (aged 10 and 12). We had the most difficult summer I could...
Hi everyone conscious its been a over a week since I shared where we were at. Life's been a complete emotional rollercoaster. So to backtrack to a week past on Saturday when G was re-admitted to the hospice, they upped his Keppra to the max, upped...
Hi everyone, Mum's had surgery and has decided against radiotherapy and chemo. Quite an unusual decision, it seems. Prognosis is very poor due to this choice. I've taken sick leave from work to care for mum along with my dad. Just here to be around...
Hi all, Just a quick update from me as we had my wife's latest MRI results this week. Apparently all is stable with abnormalities still present but no sign of new growth since end of chemo in April. We know one day the news won't be so good but in the...
So I've come to that place no one wants to come in the small hours of the morning. Things are rapidly deteriorating for us here. We've gone from scan results on Weds of last week and things being "normal" to not, in 5 days. It's like getting the scan...
Today we got the news we have all been expecting and dreading all at once. Mum had a review MRI in July with results today and its grown (was double its original size at the scan and we are a month on) She's generally well in herself as can be so...
My mum got through her 6 weeks of radiotherapy and chemotherapy without any side effects at all, although the fatigue started to creep in towards the end. Since the treatment has finished however all of the nasty side effects have hit her. First she was...
Hi everyone thought I'd give you a quick update on this week. I'll backtrack slightly here. Two weeks ago tomorrow G set off on a hair brained outing with his friends - they had hired a tandem bike and with him on the back, cycled 100km. Two ot them...
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