Grand Mal Seizures

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This has been such a difficult week for my family. Last night my husband had a seizure at home which the ambulance crew described as a grand mal seizure. I rang the oncology bleeper to find out whether we were going to our nearest hospital or the hospital treating his cancer and we went to the hospital treating the cancer.

A short while after arrival as the nurses were booking my husband in he had a second seizure in hospital. The seizure stopped on it's own without meds but they gave my husband lots of steroids, anti seizure med through a drip and a sedative.

There wasn't much the doctor could tell me last night but the most likely cause is tumor growth= but cannot say until a scan is done.. A huge setback after doing the de bulking, 6 weeks chemo/radio and 1 week chemo..

He went to sleep and my daughter and I came home in the early hours of the morning so we could sleep ourselves. I've been finding it difficult to cope with all the negative and hurtful things my husband said to me over the past 2+ weeks. The nurse reckons it is all down to the cancer. Cancer hurts so much.

I'm full of nerves to work out what happens from here.

Callie10901 over 1 year ago

So sorry to hear this - my brother did the same yesterday . It’s such a terrible thing to go through. Hope you’re ok xx

AlexC1999 over 1 year ago

Hiya,

I’m really sorry you and your family have had to go through this. I’m keeping everything crossed for you.

I really hope your husband is doing better today and that you and your daughter get as much rest as you can.

Wishing you and your family all the best!

take care,

Alex

Daybreak2 over 1 year ago in reply to AlexC1999

Hi she believes

I am sorry to hear your husband had more seizures. It's terrible to be back in hospital, the stress, seizure and pure overload of steroid medication can cause really bad humour. So some how try not to take to heart what your husband said

My husband also said nasty or intolerant things when he was stressed especially , in a&e, and when given massive steroid dosages, so I quite feel for you

. Also the tumour in the brain might cause some personality changes. It's pretty tough, see if you can get some spare moments for a breather so you can keep strong for him, yourself and your daughter

GF92 over 1 year ago

This sounds so scary, I’m so sorry you’re going through this.

My dad was reacting terribly to steroids and he was awful to my mum, it made everything 10000x harder. I’m not sure if switching the steroid or dosage or anything in an option but all I can say is I totally understand how you are feeling. It’s so hurtful, but it’s NOT them.

sending love xx

Wee Me over 1 year ago

HI Shebelieves

so sorry to hear about all that has been happening over the past couple of days. I hope things are more settled today..

Seizures are scary....

My husband had what the hospice nurse suspects was one 4 weeks ago and took hours to come out of it. He was barely conscious for about 6 hours or more then gradually the effects passed and he's bounced back. That morning though I had sent for my daughter and we were all convinced he was breathing his last.

Please make sure you take time to rest here. All of these things take their toll physically, mentally and emotionally so give yourself time to recover too.

Sending you a huge virtual hug and lots of positive energy. Stay strong.

love n hugs

Wee Me xx

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