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Some nights I sleep well, but most nights I am awake for 2-3 hours! I don’t catch up during the day, just seem to be running on adrenaline. I have a GP appointment coming up, but as I am on medication for other things I don’t wish to try sleeping tablets...
My 69 year old husband was as diagnosed with a recurrence of his GB August this year. Original diagnosis was in May 2021, so he has done well with treatment. I have not been in a good place, so I do think this Forum will help me.
Hi Everyone, Just wanted to see if anyone has experienced symptoms of nausea and vomiting towards the end of life? Mums been gradually declining for some months, but seems to have taken a turn for the worse today. She has been vomiting throughout...
We sadly lost my husband yesterday afternoon after approximately 18 months from diagnosis of grade 4 glioblastoma. He stopped eating and drinking about 2 months ago and was getting weaker and weaker. The last few days it became difficult to give his medication...
My son is just over 5 months into his diagnosis. He has had his debulking operation, his Radiotherapy/ Chemotherapy and has just started this week on his 6 months of Chemotherapy tablet form. He is coping very well and I am so proud of the way he is handling...
Hi all, I last updated in August to say that my wife's routine MRI (we are now 18 months post diagnosis and 8 months treatment free) showed stable level of enhancement (bad cancer stuff) but was still fairly minimal. She had another routine MRI last...
Hello, My nan has recently been diagnosed with GBM. She's only just retired this year, 66 years old. Still active, still the rock of our family, still the person everyone goes to when they need advice. She raised 2 generations not just one and never...
I'm just curious really,I notice that some people don't tolerate Tmz for too long but I'm wondering if anyone on here like my husband has continued with Tmz chemo for over a year plus -and if so how long? Are they similar in getting minimal side effects...
I posted earlier this week ( thank you for your replies)and am just getting used to the forums and blogs - so hope I am posting in the right place. I know every case is different - but can anyone give their experience of how long they waited between first...
Hubbys GBM has returned and only option given now is LOMUSTINE. Wondered what peoples experience is of this and how long people have been on it ? My hubby is thinking about not taking it , he only tolerated 2 months of Temozolimide before, Second surgery...
