Timings

Hi Venice 21, my wife had a month off between chemo/radio and the 5/23 TMZ chemo regime. As far as I remember they also did an MRI before starting 5/23 as a 'baseline'. (BTW 5/23 = 5 days temozolomide, 23 days off for 6 or 12 months). So sorry you're facing this. Good luck with your decisions. x

I started my “30 days” …sounds like a prison sentence… on 4 oct and finished 15 Nov, dancing gleefully out of the radiotherapy centre waving my mask! 
I now have an MRI on the 6 Dec, see consultant on the 9th and start my chemo again on the 13th. I understand this is then 6 months at 5 days a month. Stronger dose but no more radio. 
I was told its fine to fly but the travel insurance isnt cheap! 

HI

After G completed the initial 6 weeks of treatment they left him for a couple of months before mentioning the opportunity to take further chemo, TMZ. He was told it would be roughly double the dose of TMZ that was used during the 6 weeks and would be 5 days of TMZ then 23 rest days and repeat for 6 months.  He declined so I can't comment further. The Dr did say it could be timed around planned trips etc.

This is a safe and supportive space so I'm confident some of the others will be along shortly to share their experiences.

love n hugs

Wee Me xx

Hi,

My husband had 1 month of rest between chemo/radio and 6 months of temozolomide. It seems to be standard delay everywhere. 

We haven't travelled by plane since the diagnosis.

My warmest wishes and the best of luck to you and your family.

M

Good luck with your MRI Tashie my husband is probably on 4th MRI due in a couple of weeks.

We looked into travel insurance it's in the thousands when we looked so not an option for us but we house and petsit around the UK when we can.

My husband is in his 12mnth of chemo TMZ (tablets 5 days a month) he gets them sent to him and just a monthly blood test.