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Hi I am so sad to be writing this,my husband passed away on November 27th. It was 2 years and 1 month from diagnosis. He was doing ok then suddenly had to go into hospital on oct 31st for a transfusion as his platelets were dangerously low. We thought...
I was diagnosed in June with glioblastoma. I had surgery and my 6 weeks of radiochemo and have so far had two monthly cycles of oral temozolomide. I felt really sick and had pressure headaches with the temozolomide so had to go back on steroid. I’ve had...
Hi all - I haven’t written for a while but do check in often to see how everyone is and your journeys … I usually check in at night when I can’t sleep! We are still ‘plodding’ on … 17 months in and we have enjoyed a Christmas with just the four of us...
What are the signs of GBM recurrence, my mum has gotten much worse a few days after finishing radio and has stayed like this for several weeks. She has trouble with sleep and is suicidal. Her cognitive abilities are getting much more impaired. Is this...
Hi, I'm 42, with a husband, no kids, no siblings, just a difficult acting father. Not an english native speaker, living in eastern europe, so excuse my mistakes. We don't have hospice care, not many solutions for people in their final days and when they...
Husband has had a 6 week delay between carboplatin treatment as his platelets were just too low. Im increasingly concerned that’s he’s very very confused at times and getting lots of things wrong. He’s also shuffling along , I think they call it drop...
Hello everyone, I’m literally confirmed today I have glioblastoma, I’m awaiting my first bout of treatment, any help or advice however small would be so appreciated regards Sean x
Hello everyone, My dad was diagnosed with grade 4 multifocal glioblastoma on the 18th of November this year. His symptoms were dizziness (which we origionally thought were vertigo) and eventually some memory loss. simple things such as forgetting...
Hello everyone, I am not sure if you have seen my recent post explaining my dads new diagnosis of G4 GBM. Obviously I am new to this disease but I just wanted to share some things I have learnt so far in terms of supplements and lifestyle. From...
Hi everyone, It's been ages since I've written on here, but thank you to all who have posted much more frequently. It is an enormous comfort to know we are not alone. Well, S (F37) is still going, 18 months post diagnosis. It's been a hell of an...
