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Dear all, I have just read through all the forum posts and found them incredibly helpful. This is lterally the first time I have been on the Macmillan site. THANK YOU! everyone for sharing your experiences. I am in a slightly unusual position....I...
Hello, I am new to the group and have joined because my 55 year old sister was diagnosed with a Glioblastoma at the beginning of Sept this year. She is slim, fit and has a healthy lifestyle but began suffering with brain fog in June which she initially...
Hi Everyone, It's been a while since I've been here. For those that know our journey it feels as if it's been a million years long. Mum was initially diagnosed in Aug 2022, had a short round of treatment and a scan in July 2023 showed rapid growth,...
Hello there. I am new to this group, reaching out from France. My husband was diagnosed with GB in September 2023, it was fully debulked, he had 6 weeks of radio, chimio and 6 months of temozolomide. His GB was right temporal one and it had affected...
Hi all. My dad was diagnosed with GBM in August. Tumours were everywhere (multifocal) and spread rapidly. Since then he’s lost all mobility on one side of his body and has become completely bedridden and wheelchair-bound. He requires round-the-clock care...
New here. Not even sure exactly how this works. My husband was diagnosed with Glioblastoma stage 4 in early June. Surgery debulked (?) the tumour and the surgeons were very happy. He has just this week started 6 weeks of chemotherapy alongside radiotherapy...
Hi everyone. My husband was diagnosed a couple of weeks ago after an initial seizure in July. At the time there was no evidence of a tumour but his neurologist (following-up on possible late-onset epilepsy) scheduled an urgent follow-up MRI just in case...
Hi all, I know it's too late for many but a bit of good news I just saw in The Times. https://www.thetimes.com/uk/healthcare/article/remarkable-therapy-shrinks-aggressive-brain-cancer-by-half-nbthkg7qp I believe Dek has mentioned this trial before...
My wife has a lump on her brain recently diagnosed, likely a glioma. She has the operation soon to remove and biopsy then we expect radio and chemotherapy 3 weeks afterwards. We can get her sister over from abroad to help, but is it better to do this...
Has anyone been having olparin trail with radiotherapy and temozolomide. I wonder how they got on with it and terms of treatment for Glioblstoma. https://community.macmillan.org.uk/cancer_types/glioblastoma-multiforme-brain-tumour-forum/
