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I have a melanoma that was treated in October last year with Proton Beam radiation. Due to the melanoma proximity to the central core it was recommended not to have a biopsy. I find out in March if the treatment was successful. I have had a recent liver...
Hi everyone, We’ve launched our annual survey for 2024! We want to hear what you think about the Online Community. The survey should take around 15 minutes to complete. The survey is anonymous. Please complete our survey here. This survey is designed...
Hi everyone, I am a 47 year old married lady with three children, ages between 16-23 and a soon to be 4 yr old grandson. my world was thrown apart on the 18th of December when I went for a eye test thinking I needed glasses, I have always had amazing...
Hello all.. Recently diagnosed and have had the clips fitted last month. Going up to clatterbridge for pbt this week, am struggling tbh with the diagnosis and what the future holds.. Does anyone have any advice on how to get used to this. Does it happen...
Hi everyone, I’m sue and I live in Cornwall. I was diagnosed 6 years ago and have had radiation retinopathy since have brachytherapy. I’ve had numerous injections, laser, and lastly 2 victrectomies due to having constant bleeds from the start. My last...
Hi I have been newly diagnosed with ocular melanoma. Mine is going around my eye so would be difficult to treat other than taking my eye out which I am having done at the end of Sept! I am so scared at what the future holds as I am 37 years old with...
Hi I had Proton Beam radiotherapy 11 years ago for eye cancer and it has decided to grow again in my eye. I currently have vision still in that eye but no peripheral vision. I have been offered total removal of my eye and go down a prosthetic eye or sterotactic...
i am not going to relate the whole saga here but basically i need both a vitrectomy and a cataract removed on my OM eye so that the hospital can see in to check my tumour. I rang yesterday to check waiting times - the specialist ( a retinologist not...
Hello I have just joined the forum as my wife has been diagnosed with a melonoma of the eye. She has just had treatment with a radioactive plaque at Moorfields. I thought it would be good to contact people who have been going through the same situati...
Hello. I am 56 years of age and just had Proton Beam Therapy (Clatterbridge in Liverpool) for a malignant Melanoma in my eye. It was found a few years ago after a regular eye check up at Boots. I was referred to my local hospital, who then referred me...
