New to the group although diagnosed 6 years ago

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Hi everyone, I’m sue and I live in Cornwall.  I was diagnosed 6 years ago and have had radiation retinopathy since have brachytherapy.  I’ve had numerous injections, laser, and lastly 2 victrectomies due to having constant bleeds from the start.

My last check up was 3 weeks ago and I was told I had a recurrence , cancer is back, and the only option for me was to remove the eye…..I’m scheduled for surgery a week on Tuesday at moorfields.  

to say I was shocked was an understatement…I’m still in disbelief to be honest ….I’m very scared of loosing my eye although I know it’s the best thing to do and I am now blind in my eye so it’s working but I’m still scared.

feeling a little like I’m in some kind of dream and can’t quite believe it’s happening ….anyone out there had or going through the same thing ? 

xxx

  • Hi  and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

    I'm sorry to read that you cancer has returned and it's natural to be worried about the upcoming treatment.  posted a few months ago saying that her husband was about to have this surgery. I've 'tagged' her into my reply to you and hopefully she'll pop on and share his experience with you.

    It would be great if you could pop something about your diagnosis and treatment so far into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

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     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • Thank you latchbrook x will do

  • Hello sue

    I hope you are well! How was your surgery sorry to hear it has come back!

    I'm having my eye removed in 2 weeks cos I have ring melanoma which means it's going around the eye so no other options for me just take it put!

    Best wishes 

    Panda