. Hello from a new member

Hello 

Hi

I hope your wife is making a good recovery. I had plaque radiotherapy last July. It was all a shock at the time although I am in a much better place now, in spite of ongoing eye issues and worries re liver etc. 

Hi Surfer Boy

     Thank you. She is improving but I wondered   How long it takes for the eye to fully open .

She has been referred to the local oncology department for follow up. Will they take scans and blood tests?

thanks for your responses

Hi

it took well over a month for my eye to open up and I was reassured that that was normal. I was given an ultrasound of my liver at the time of radiotherapy and now have 6 monthly MRIs of the liver and blood tests locally. I have regular eye reviews locally and 6 monthly checks up in Liverpool where I was first treated. 

I am not sure why your wife has been referred to local oncology. You should have been given the contact of a key worker at Moorfield so I would enquire there. My key worker has been very helpful. 

I was particularly affected by disabling fatigue which lasted 6 months. That has now gone. 

Hope that helps and try to take each day as it comes as it’s all a lot to take in initially.

Thank you - that is very helpful.

will take your advice to contact the Moorfields support nurse.

You are right -it is a lot to take in at first.

Hi, I am about to travel from Northern Ireland to liverpool for plaque treatment on a melanoma. I am terrified and don't know what to expect. Would you be able to tell me how your wife dealt with the procedure and aftermath, thanks

Hello

    My wife was treated at Moorfields in London but I assume the process is the same. We. We’re both very apprehensive as we had never heard of this treatment before. The nursing staff are very reassuring- it is an everyday event for them of course. She was in Moorfields for three days in total and was very tired when discharged. Her eye was closed with a dressing over it and we were given eye drops and ointment to take with us. I gave the medication and it was a few weeks until her eye opened properly. Apart from tiredness she has recovered well.

I hope that you are reassured. You will have a support nurse who will be able to answer any questions.

Hi

i was treated at Liverpool last June. I experienced no discomfort or pain and did not need painkillers. The hardest thing was being 200 miles from home. From my experience I would not worry about the brachytherapy. 

Fatigue afterwards was hard and lasted 6 months. My eye was reluctant to open for over a month. I had my 2nd review in Liverpool last week and everything is going well. The tumour has shrunk. You’re in very capable hands. 

Try not to worry although I appreciate that that is hard

All the best 

Paul