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Hello I'm a newbie to this group. I'm feeling very over whelmed with the process of waiting to confirm my cancer diagnosis in my left eye. Is there anyone here who can talk me gently through the procedures. Been called back urgently on Tuesday after...
I've left matters for a couple of weeks post "beastie nuking" to try and encompass any short term effects. However, 1st things first. Treatment. Accommodation as per the mask moulding appointment is set up for you and no hassle involved. Transport...
Last Monday was mask moulding day at Clatterbridge. I thought I would break this into the 24 hour story to cover accommodation aspects as well (assuming an individual isn't "local" ish, and that doesn't change matters). Travelling up on a Sunday got...
Hello, I'm new here and had a Ocular Melanoma diagnosis a month ago. I have been monitored yearly, because of a large choroidal nevus for the last 13yrs. A month ago I had the dreaded checkup in Glasgow where they sit you down and say 'cancer" ...
This is a follow on from my experience with Tantalum Marker insertion a week ago where I mentioned I would look to include a separate thread for the recovery element. I caveat as ever that mine is just one experience, and others may encounter other...
Yesterday was tantalum marker day. Step 1 on the treatment of my beastie. So what to expect? Well no getting around it, it is a surgical procedure and so expect not to eat/drink after specific times. The surgical ward literally doesn't open until...
Hi, I just wanted to reach out to others that are in the same situation. My mam was diagnosed with melanoma in her eye several years ago and they managed to get rid of it. This month she was diagnosed with choroidal melanoma which means it has spread...
Well I find myself in a new community of people by circumstances I guess none of us would rather be dealing with. I choose to engage so as to in some small way deal with "The Beastie". That is a non-sentient invasive little physical representation that...
Help! My GP believes my latest chest x-ray shows a lesion, and therefore potential metastasis from the choroid melanoma. Full-body CT scan arranged on 'urgent pathway' which also sounds ominous. Anybody have any experience of this? Freaking out.
Hi All I was diagnosed just over a month ago after getting blurry vision in my eye and going for a routine eye test, I opted to have my eye removed instead of proton beam therapy, I have just returned home from Liverpool from having my surgery, is anyone...
