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Hi, I didn't want to write as it is starting to feel all to real. I got the all clear in May which was brilliant, but I have had strange feeling in my stomach and nausea for several months, I told my consultant when he was due for a routine call, he said...
Hi All had my two sessions of methotrexate treatment after the second treatment now 3 weeks ago I’ve become severely depressed. This is not like me and coped well with the 6 R-CHOP. It’s like the past 6 months has finally caught up with me, but I’m...
Hi …over the moon …just to give you all our news and hope for the future …hubby , R-CHOP , heart scan, pet scan 5th ROUND ,6th cancelled ,….RESULTS …scary, scanxiety…oh my days what a horrible but necessary journey …DLBCL has LEFT THE BUILDING xxx
Had my 3rd R CHOP on Friday which went ok. My problem is severe heartburn and reflux - everything I eat or drink hurts and burns. I also have an incredibly sore throat. Last week I left hospital after a 9 day stay (yes during that heatwave!!) where I...
Hi my husband George is more than halfway along the road of this journey, his last round of chemo (4th round of 6) really knocked him for 6, he looked absolutely awful, said he felt like he was hit by a bus, his BP plummeted, he had dizzy spells and just...
Hi. We were scheduled to go on Mon for hubbies 2nd chemo treatment. But I just saw his blood results. WBC is 2.5 neutrophils are .79 thats too low for chemo right? He’s usually a 6 WBC I can’t find the minimums needed to not delay any insight...
Hi everyone, my hubby George had his halfway scan last week, and good news, the swelling in his spleen has reduced significantly, and the consultant is delighted with his progress, she said all the boxes have been ticked, mind you his 3rd treatment was...
Just finishing my 3rd round of R-CHOP, due my 4th on the 2nd August, got to say that this round has been the toughest so far. I've felt pretty rotten from about day 6 of the cycle, and it's lasted till now, not improving after a week like the first two...
Had CLL for just over 3 years which has been kept under control by firstly Ibrutinib and for past 2 years Venetoclax so huge shock when I became unwell a few weeks ago and it was confirmed I have Richter’s Transformation. Had 1st R CHOP last Tuesday and...
Thank you all for your lovely support and messages, I feel much better than last week, George will have his halfway scan next week, so hopefully we will get some good news, will keep you updated, take care and will talk soon Hibbie
