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Hi my husband was diagnosed in April and so far he is coping very well with the treatment, he is having his 3rd chemo session on Weds next week, so hoping he is ok, as I heard that the last 3 treatments can be very tough? I'm in a bit of a spin, some...
Hi everyone... . my husband is 52 and was diagnosed with Diffuse B Cell Lymphoma in march.. We thought he had IBS turns out after bloods and lots of scans that he has a mass in his spleen, groin , neck and stomach. He is having chemo. The last few months...
Hello everyone, hope you are keeping as well as possible, I have recently (3.5 weeks ago) started ibrutinib tablets following failed Car-t cell therapy. Is there anybody who has also used ibrutinib for DLBCL? I would be super grateful if you could...
Hi all, I have completed R Chop chemo to battle a very large mass in my stomach and retroperitoneal which was encasing the blood supply to my major organs, which was to risky to operate on. After the chemo and waiting the six weeks for my PET scan I am...
Hi all.. Was diagnosed with diffused non Hodgkin’s large B cell lymphoma stage 4; went through chemo and completed my treatment just over a year ago and being monitored regularly. my question is how do people feel post treatment? I have good days...
Hi everyone It's Steph here from the Community team. I hope you don't mind me posting here today, I just wanted to share our latest Community News Blog about Peripheral Neuropathy . The blog highlights content from the diffuse large B-cell lymphoma...
Hi all dad had a half way scan in January and was told he’s cancer had gone then finished treatment in march then scan in may and now they said he has to have radio therapy every day for 18 days as cancer still active under armpit he’s feeling a bit deflated...
Hi all, my consultant has suggested methotrexate as a preventative as my lymphoma was out of the lymphatic system and am at risk of cancer spreading into the Central Nervous System or Brain. I have been through one of the chemos of methotrexate which...
New to this site and looking for some hope in our situation. A close relative was diagnosed DLBCL last year-the diagnosis although worrying was to an extent a relief as they initially thought the tumour was behaving like a small cell lung ca pre biopsy...
I got my diagnosis just 12 hours ago and I'm now wide awake feeling scared. I don't know what stage I am yet as I'm awaiting another CT and my first appointment with haematology but this may be another two week wait. And this is the thing that's frustrating...
