Hi I'm new. I've previously had 3 lots of multifocular pleomorphic adenoma surgery, most recently sept 2020. Last week they found an Acoustic Neuroma, on the opposite side. I'm totally bew to this, and would really appreciate any advice or feedback...
I'm in a quandary!! 11 years ago I was experiencing blackouts and balance issues that led me to the Neurologist at Southmead hospital in Bristol. I had a very abnormal EEG and MRI showed a fairly large Lesion in the Petrous Apex. Due to the location...
Hello there. I am new to the group so just thought I'd share my story so far. Two weeks ago I was told I had a very large brain tumour growing in the insular part of the frontal lobe. I have my pre op next week then hopefully surgery the week later...
Hi It feels alien to be even writing this. Yesterday we were told my beautiful full of life daughter has a brain stem tumour that will never go away and she will die. I know I'm not the first mum to go through this highly emotional thing but it feels...
My name is Diane, I’m 56 and married to my lovely husband Robert. We have 3 children between us and we are proud of all three. I have a son who is 30 and has Autism with severe learning difficulties. I also have 2 beautiful step children Laura 33 and...
I've never been so scared in my whole life .
I don’t even know where to start.! Some one I love so much and am so close to! In December 2021 my nan was taken to hospital due to slurred speech. After doing tests and scans they said they could see some swelling on the brain. 2 weeks later we then...
My father has recently been diagnosed with a brain tumor and we just don't know what to expect. How quickly he will worsen? He seems to have deteriorated quite a lot in a week already.
Hello my name is Emma. I was diagnosed with grade 4 Glioma brain cancer on Christmas Eve. I would like advice about our family holiday abroad on whether flying causes problems with my head with pressure, so I can help make my decision on going or not...
I was diagnosed with a Grade 4 glioblastoma in October 2021. I had surgery followed by radiotherapy and chemotherapy and I am continuing with oral chemotherapy which will finish at the beginning of August. I have been fortunate to have few side effects...
