SA message care on email asking if I needed to talk. I wanted to reply that I am not ready. But I can't find the place to respond. Maybe it's a computer generated email? Anyway thank you. I am slowly telling my friends....its not easy and for us it doesn...
Hi, My Mum, who is 70years old was diagnosed two weeks ago with a grade 4 GBM. I have just been to Addenbrookes with her today where the doctor said they couldn’t do anything because of where the GBM is and it’s too risky to operate and any chemo or radiology...
Hi everyone , My dear beloved mum has today opted for whole head radiation . Im now concerned it’s prolonging the inevitable and to succumb sooner would be a release . Mums had two recent surgery’s , which she coped with incredibly well. , But sadly...
Hello, I have just signed up. I am not really sure what to type as I lay awake reading some of these posts. I feel terrible for the posts I see so far and know our stories are individual hell to us all. But yet, I still can’t help feeling guilty for...
Hi everyone, I am new here and am glad to have come across this wonderful resource. Caring for my husband is extra challenging and stressful for me at times because I have long believed that he also shows many characteristics of autism and ADHD. He...
My husband 51, was diagnosed with GBM in April 2021. We have two daughters, 16 & 19. His first symptoms were severe headache/neck ache and eyesight problems, resulting in him not being able to work or drive. Our GP noticed pressure buildup behind one...
Hello, My mum (almost 80) has been diagnosed high grade inoperable Brain tumour. It covers the frontal right quandrant. She had no sympoms until she contracted a UTI and her mobility went down hill very fast and i noticed the left side failing. A CT...
Hello, Not sure really what I'm after. My best friend has a brain tumor for a few years but in January it was diagnosed stage 4 terminal. I spent the weekend with her boys and I keep thinking she has to make it. I know she won't make it to Christmas...
Hello I am just hoping for some advice please if anyone can offer any as I don’t really know where to turn. My close relative has recently been diagnosed with a glioblastoma on her frontal lobe. I have paused my entire life to try to care for her I haven...
Hi new to this group ...my 4yr old son has been diagnosed with Glioma ..he had surgery to remove the tumour but they cudnt remove it all as it wud have been to dangerous ...had his 3 month mri and been told its grown again ...his dr doesny know.if hes...
