Hi Ladyblue
a warm welcome to the group. Oh what a journey you've had!
I'm no expert but I think you might be best to give your GP a call and chat through with them how you are feeling and express your fears about the MRI. Sometimes its harder to deal with the unknowns than the hard facts so there may be an alternative scan that can be done to determine what's going on or perhaps even some bloodwork would give them some clues. Until you ask though, you're not going to know.
My husband has a stage 4 brain tumour and he gets himself so anxious about going for his MRI check ups and like you says "what's the point" but it gives the doctors a picture of what's going on and then they can take things from there with your consent.
This group is really safe supportive space so hopefully there will be someone within the community with some personal experience of the same lesion as you that can put some of your fears to rest.
If you feel you can't talk to your GP please remember you can call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see what is available. This service provides lots of cancer information, emotional support, benefit and financial guidance or just a listening ear.
sending you a huge virtual hug.
love n hugs
Wee Me xx
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