Hi, I know that's no real answer to this but I'm feeing so low, so confused I think it might help to ask. I feel like my body is giving up. I've had 6 weeks radiotherapy, chemo and1 cycle of 5 days Temozolomide. I'm currently on a break, start my next...
My husband has been treated for Glioblastoma. Radiotherapy and chemotherapy have been completed. He has been on steroids since the beginning a year ago. I have been reducing the steroids, as per doctors recommendation (Dexa). He has been on 1mg for...
Hi all. Does anyone have any suggestions for non pharmaceutical alternatives to Lansoprazole please. Ive been on Dexamethasone since diagnosed with primary lung and mets brain, liver, lymph, bone and Adrenal. The Lansoprazole was prescribed to protect...
Hi everyone I've just finished week 2 of 33 radiotherapy fractions. I've been on long term sick leave since last July from surgery during which I had a minor stroke and had to spend quite a while in a rehabilitation ward to recover. I've been fortunate...
Hi just wondering if anyone else has had any experience with regards to a pineal parenchymal tumour with immediate differentiation. Looking for some advice or general information off someone who also has this.
HI everyone I don't often start a post these days although I still reply to the majority of them on here. I exchanged a few emails with the Community Team this week and suggested this might be an appropriate time to re-share a blog I first wrote for...
It's been awhile since I posted on this forum. Hello everyone. Our story began in January 2023 when my husband was diagnosed with a cancerous brain tumour. The news came as a total shock to the whole family and this Macmillan forum really helped me keep...
Some may remember that i posted saying that I had a right frontal lobe 14mm meningioma, enlarged ventricles (longstanding) and a tiny small cyst on the left of my brain. Well today we saw the neurosurgeon and he said that he will do another MRI scan...
I’m living with incurable brain cancer (glioblastoma) and I’m doing well scans are showing it’s stable. However the past 6 months or so I’ve never felt so alone in my life I have had therapy through turning point but if I’m totally honest it didn’t really...
Hello all, I hope that you are having a good day relative to your circumstances. My name is Pete and I am 61 years old. I am very lucky to be married to my lovely wife Deb and we both have the privilege of being parents to the amazing and beautiful...
