Lonely - anyone else struggling with going out, general mobility, or depression?

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I’m living with incurable brain cancer (glioblastoma) and I’m doing well scans are showing it’s stable. However the past 6 months or so I’ve never felt so alone in my life I have had therapy through turning point but if I’m totally honest it didn’t really help.

I don’t really socialise due to not been able to walk far (severe pain in my legs) and also due to my energy levels. I do think I’m depressed but I really don’t want any more tablets. Yeah I’m alive and in ok health but this isn’t living it’s just existing.

I’ve no interest in anything at all and I know that people say go out you will feel better so I do and the moment I leave the house all I can think about is going back and putting my pjs on.

Does anyone else feel like this? 

  • You do sound depressed, I understand you being reluctant to take more pills, having just come to the end of treatment I never want to pop a pill again. 
    I think theres a few things going on here. After all, we are all given a rather grim outlook so whats to feel cheery about? 
    so , for both physical and mental reasons you dont really want to go out . When you snuggle in your P Js , do you feel any better? 
    How about a challenge of one thing a day? A 100 metre walk one day , trying to go obe bus stop the bext? I dont know where you live so its hard to be specific. 
    Then theres finding things to do indoors. Learn a musical instrument? Learn a foreign language? 
    do you have friends and family to help? I assume you arent in paid work right now, but how about volunteering? 
    take care and good luck . 

  • Are passionate about anything like fishing, cars, cooking, movies etc ? I'd try and rekindle that a little at a time. Volunteering sounds like good idea if you can get a lift.

    Otherwise ( A bit contentious here) get a little angry, not with friends or family, but with the crappy hand we've been dealt. Anything to get a few juices flowing again

  • my pjs are like my comfort zone and there’s nothing better for me to receive as a gift than pjs or a dressing gown. I first gained lot of weight due to the steroids I was put on and went from 9st 4 to nearly 12st I was in 14-16 in clothing, and then I lost weight and I now weigh 6.4. Due to my friends comments “ u need to eat”, “u look awful” “you look ill” i tend to stay in pjs and my dressing gown to hide my body. I’m not purposely not eating but I literally can’t eat a full mcds happy meal and I don’t have an appetite. I refuse to  eat when I’m not hungry and make myself sick. But maybe a target a day as you’ve suggested would be a great idea! Even if it’s even go for a ride on my mobility scooter. Or even get dressed even if I’m not going anywhere. Thanks for the advice xxxxx

  • At the moment I’m feeling angry with my friends because they’re constantly commenting about this and that and it’s like everyone around me is an expert and there another doctor. You shouldn’t be doing this n that eg you shouldn’t be smoking as much or u need to eat this instead of that and it’s got to the point where I just think if I stay home then there’s nothing for anyone to pick at…. 

  • Yes,so many experts! Happy to do a zoom call with you if that helps