Some may remember that i posted saying that I had a right frontal lobe 14mm meningioma, enlarged ventricles (longstanding) and a tiny small cyst on the left of my brain.
Well today we saw the neurosurgeon and he said that he will do another MRI scan next November and will monitor me.
I'm experiencing tingling sensation left hand side arm,lower leg and foot numbness, occasionally weakness left side, buzzing in ears, extremely forgetful and clumsy, headache every morning I wake up like a sinus headache then During the day a dull headache that's photosensitive.
I'm in the UK and while I'm delighted I'm not facing a operation I do worry that what I'm experiencing is not fibromyalgia.
Too cut a long story short symtoms started 2019 got ct scan which showed a slightly smaller tumour please take note i was not informed of this! Anyway sent to a rheumatologist who diagnosed fibromyalgia in 2020 then 3 weeks later covid hit put symptoms down to fibromyalgia as I knew no difference because the country/world was on lockdown.
Started to realise in 2024 December that my symptoms were taking over my life constantly exhausted, pins and needles etc pain killers were useless, and this my friends leaves us with today's results and as I say I'm honestly delighted that the Neurosurgeon says the tumour has nothing to do with the symptoms but what if I was misdiagnosed fibromyalgia and these symtoms have been here since 2019 when the tumour was 1st noticed but I was not informed, what if my symptoms have gotten worse because of the growth although small the frontal lobe is an area that causes all the symtoms i am having and have had since 2019 if the tumour presses on the nerves, can a Neurosurgeon see from MRI Scan with contrast if the tumour is pressing on nerves?
Basically what I'm asking is what would you do or am I over thinking this 
Is my tumour really not symtomatic.
HI
what a journey you've been on!
I feel some of your questions would be best raised with your neurosurgeon. They should be able to tell you what symptoms the impacted area of the brain could be displaying. My late husband was diagnosed with a stage 4 primary brain tumour and right from the start the neurosurgeon was able to tell us that due to its location he would suffer from speech, language, communication and understanding issues. He didn't mention pressing on nerves as such but they do or they should know which area of the brain does what.
There's some good general info on the main body of the website -Meningioma in adults | Macmillan Cancer Support and you can also call the helpline for some support too. Within the online community there is also an Ask an Expert section.
Although my personal experience isn't in this area I am confident that others in the group will have more relevant words of wisdom to share with you.
This is a safe and supportive space so please reach out here anytime. There's always someone about to listen who gets it, someone to hold your hand and to offer a virtual hug when its needed. You're not alone. We've got you.
It’s always good to talk so please remember that you can also call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see what is available. This service provides lots of cancer information, emotional support, benefit and financial guidance or just a listening ear.
for now though I am sending you a huge virtual hug and lots of positive energy
love n hugs
Wee Me xx
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
