Some may remember that i posted saying that I had a right frontal lobe 14mm meningioma, enlarged ventricles (longstanding) and a tiny small cyst on the left of my brain.
Well today we saw the neurosurgeon and he said that he will do another MRI scan next November and will monitor me.
I'm experiencing tingling sensation left hand side arm,lower leg and foot numbness, occasionally weakness left side, buzzing in ears, extremely forgetful and clumsy, headache every morning I wake up like a sinus headache then During the day a dull headache that's photosensitive.
I'm in the UK and while I'm delighted I'm not facing a operation I do worry that what I'm experiencing is not fibromyalgia.
Too cut a long story short symtoms started 2019 got ct scan which showed a slightly smaller tumour please take note i was not informed of this! Anyway sent to a rheumatologist who diagnosed fibromyalgia in 2020 then 3 weeks later covid hit put symptoms down to fibromyalgia as I knew no difference because the country/world was on lockdown.
Started to realise in 2024 December that my symptoms were taking over my life constantly exhausted, pins and needles etc pain killers were useless, and this my friends leaves us with today's results and as I say I'm honestly delighted that the Neurosurgeon says the tumour has nothing to do with the symptoms but what if I was misdiagnosed fibromyalgia and these symtoms have been here since 2019 when the tumour was 1st noticed but I was not informed, what if my symptoms have gotten worse because of the growth although small the frontal lobe is an area that causes all the symtoms i am having and have had since 2019 if the tumour presses on the nerves, can a Neurosurgeon see from MRI Scan with contrast if the tumour is pressing on nerves?
Basically what I'm asking is what would you do or am I over thinking this Is my tumour really not symtomatic.
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