My husband has been treated for Glioblastoma. Radiotherapy and chemotherapy have been completed.
He has been on steroids since the beginning a year ago. I have been reducing the steroids, as per doctors recommendation (Dexa). He has been on 1mg for a couple of months and now reduced to half 1mg.
This has been about 3 weeks ago and he has had a sore swollen ankle, sore arm and now a sore knee.
The hospital have said that the reduction in steroids will make him feel unwell but not affect his limbs and we should increase the steroids again.
Anybody else have problems with painful joints? Do you think steroids is the problem?
We would prefer to try and keep the steroids reduced but the hospital have said it is better that he feels better on the higher dose.
The hospital generally leave us to decide to increase or not to increase, but how do we know what is best?
Purplebadger
